Cystic Fibrosis Foundation - Click here for homepage
Stay Informed  |  Volunteer  |  Clinical Trials

In This Section

Quick Links

Find a Chapter

Get Assistance

Get Assistance - Cox Boys
We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

Join us on Facebook!  Facebook 
Follow us on Twitter!   Twitter
Follow us on Instagram!  Instagram 
Add us to your circle in Google+!

Google+ 

Subscribe to our channel on YouTube!  YouTube  


 

 

Print  

CF Foundation Testifies Before Congress on Improving Rare Disease Research

June 18, 2009

Mary Dwight, vice president of government affairs for the Cystic Fibrosis Foundation, testified before the House Small Business Committee yesterday, June 17.

In her testimony, she urged Congress to support research for rare diseases at small biotechnology companies through the Small Business Innovation Research (SBIR) program.

Ms. Dwight specifically asked the Committee to dedicate up to 10 percent of program funds toward rare disease research and to ease other requirements that have been impeding small companies from applying for funding under the SBIR program.

Many small biotechnology companies rely on SBIR grants in order to conduct innovative research programs for cystic fibrosis and other rare diseases. By enacting the changes Ms. Dwight noted, greater support would be available to companies developing potential therapies for CF.

Watch Ms. Dwight’s testimony on cystic fibrosis research and the need for a stronger investment in rare disease research.

 

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.