| | U.S. News & World Report: A CF Care Center Excels and Uses CFF Tools to Get There
July 27, 2010
"For a child with cystic fibrosis, every breath is a small victory in a never-ending battle," begins a story in the August issue of U.S. News & World Report, on newsstands today.
While there is no cure for CF, the grip of the disease has loosened, the story says, and the pace of progress is picking up as a result of CF specialists increasingly adapting tools of health care reform, pushed by the CF Foundation.
The story, "Breathing Lessons," describes how a CF Foundation accredited care center — Cincinnati Children's Hospital — moved from offering "mediocre" to outstanding care.
The piece highlights the CF Foundation's role in prompting Cincinnati and all CF centers to work toward giving better care through collaboration, adopting best practices and taking an honest look at how patients were faring in each center.
Describing the Foundation's decision to go "transparent" and make the health outcomes of each center readily available, the story says: “In 2006, the foundation took the almost unheard-of step of going public with outcomes data," the story says. "Anyone can now look up average lung function and body mass index (BMI), the two key CF indicators, for every center's patients at the foundation's website”.
Read the full story.
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