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Dedicated Foundation Donors Gather in Orlando to Celebrate the Year’s Milestones

October 22, 2012

More than 120 generous CF Foundation volunteers and donors — primarily from the Southeast — gathered for a dinner reception in Orlando, Fla., to celebrate the milestones achieved over the past year in the fight against CF.

Lynda and Patrick Griffin

Lynda Griffin, shown here with her husband Patrick,  shared with the crowd her 6-year-old son’s story of his early struggles with CF and the news of his vastly-improved health now that he is on Kalydeco™.

Held at The Peabody Orlando, guests were joined by CF Foundation leaders President and CEO Robert J. Beall, COO C. Richard Mattingly and Executive VP for Medical Affairs Preston Campbell who thanked them for outstanding dedication to the CF mission.

“Thanks to your support, we have achieved unprecedented success in developing drugs that have improved the length and quality of life for those with cystic fibrosis,” said Rich Mattingly. “With your continued dedication, we will develop countless other treatments that will change the lives of all people with the disease.”

Stories of Hope and Acceptance

As guests enjoyed their dinner, they listened to two parents’ personal accounts of raising children with CF. Lynda Griffin, mother of Cian, 6, shared her son’s early struggles with the disease and news of his vastly-improved health now that he is on Kalydeco™.

Following Lynda’s speech, Mike Beatty, father of Piper, 30, movingly spoke of his daughter’s courageous acceptance of CF, which she’s said is as much a part of her as her brown eyes and the fact that she’s tall. With her acceptance, Beatty noted, is Piper’s fierce determination to help change the course of the disease so all people with CF can live longer, healthier lives.

Rebecca Brock Schroeder with Preston Campbell

Rebecca and Brock Schroeder, whose son Brady has CF, enjoyed a conversation with the Foundation’s Executive VP for Medical Affairs Preston Campbell.

Advancing Drug Discovery and Development

Among the guests were many donors to the Milestones II campaign. Chaired by Joe O’Donnell, Milestones II: Accelerating the Search for a Cure is the second phase of the Milestones campaign, which raised $175 million. Milestones II is dedicated to raising an additional $75 million to help further accelerate the pace of progress toward finding a cure for CF.

“No promising avenue toward a cure should be left unexplored. The Milestones II campaign affords us the opportunity to support the science that will lead to more effective therapies and a cure for this disease,” stressed Beall.

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.