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Great Strides Stories Topper

 

 




Each month through the end of the year, we’ll feature a special person or team who played an integral role in the 2012 Great Strides walks. We hope you’ll find this story to be inspiring as we continue to make Great Strides in our efforts to find a cure for CF!

Doug Wright – Alexis Wright Family Team

Walk: Dana Point, Calif., walk held April 28, 2012
Chapter: Southern California Chapter – Orange County Office
Team: Alexis Wright Family Team led by Doug and Tina Wright, their daughter Alexis, 8, who has CF, and their son Devin, 11.
Impact: Raised more than $43,000 so far in 2012

Alexis Wright Great Strides Great Stories

Alexis, 8, who has CF, wants to either be a singer or soccer player when she grows up. Her parents dream of a cure for cystic fibrosis and hope one day that the hardest challenge she’ll have to face will be choosing between soccer and singing.

Why I Walk

My wife Tina and I found out that our daughter Alexis has cystic fibrosis when she was 4 months old. It took us a while to come to grips with it, but we knew we needed to do everything we could to fight for a cure. We soon found that the Great Strides walk was a way for us to bring awareness and financial support to the cause, and it’s been a major focus for us ever since.

We started our team when Alexis was 4 years old, and two years ago I became the chair for the Dana Point walk in California. We put a lot of work into the walk each year; but the way we see it, this is the most important fight of our lives, so we need to do anything we can to fight for our little girl and make a difference.

What Makes Me Proud

Alexis’ outlook on life makes me proud every day. After everything she’s been through, Alexis is full of love and finds joy in the smallest pleasures. She lights up the room and the lives of everyone she touches. She’s truly an inspiration.

I’m also extremely proud of my son, Devin, Alexis’ older brother. As many families dealing with CF know, it doesn’t just affect the patient — it affects the entire family. Between the dozens of pills, multiple breathing treatments, doctors appointments and making sure Alexis gets enough food and nutrients into her body, it takes hours of daily commitment just to maintain her health. This puts a lot of our focus on Alexis, and yet I have never heard one complaint from Devin. He’s never been competitive or resentful of the extra focus on his sister.

Tina and I try to stay positive about CF around the kids, but I think Devin realized early on what’s at stake. Recently, he told us he was thinking about becoming a scientist when he grows up so he can help cure CF. We were so proud of him…we didn’t know whether to smile or cry.

Tips for Other Great Strides Teams

When you’re fundraising, don’t be afraid to put your heart on the line. It makes a huge difference when people know how much their support matters and where your passion is coming from. Also, don’t be afraid to ask your company or any organization you’re associated with for help — a corporate donation can make a huge difference.

A few years ago I learned that my company, Quest Software, was striving to give more and make a difference. Amazingly, they were having trouble reaching their charity goals so I approached them and said half-jokingly, “If you’re having trouble giving money away, I think I can help.” I then went on to tell them about CF and Alexis.

Quest committed to match 100 percent of our donations up to $20,000, which they have now done for two years in a row. Their support has been huge for us — it’s doubled what we’ve raised — and I can’t thank them enough.

My Biggest Challenge

It can be difficult to fight CF every day relentlessly, but I know that today we are closer to a cure than we have ever been. Now, my biggest challenge is continuing to reach deep inside myself and turn my passion and desire into more energy so we can reach the finish line.

Our Thanks

Our family and friends have been unbelievably amazing. They consistently go above and beyond each year to raise money in our Great Strides walk. Their support means the world to us and our gratitude is endless.

My Dream

Alexis loves to sing and play soccer. She recently got the lead role as Ariel in a local production of The Little Mermaid and has joined a club soccer team, so she plays nearly every day. She can’t decide which career she’d rather pursue when she grows up — to be a world-class soccer player or an actress. 

My dream is that we will win the battle against CF and that the hardest challenge she’ll have to face will be choosing between soccer and singing.

Alexis’ dreams give us the motivation to fight for ours — that one day CF will be a distant memory and everyone who is struggling with it today can survive beyond cystic fibrosis.

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