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We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

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Great Strides Stories Topper

 

 





Each month through the end of the year, we’ll feature a special person or team who played an integral role in the 2012 Great Strides walks. We hope you’ll find this story to be inspiring as we continue to make Great Strides in our efforts to find a cure for CF!

Nikki and Chris Hahn – Logan’s Heroes

Walk: Fargo, North Dakota, walk held May 5, 2012
Chapter: Dakotas Office
Team: Logan’s Heroes led by Nikki and Chris Hahn and their daughters, Logan, 6, who has CF, and Afytn, 5.
Impact: Raised more than $36,000 so far in 2012


Why We Walk

We learned that our daughter Logan has cystic fibrosis when she was 28 days old, through newborn screening. At the time, we didn’t know a whole lot about the disease — but we did know two local children who had it, and they were alive and well. That gave us hope.

When we met with the CF doctor, he told us to make plans for Logan to graduate high school and go on to college, and “we’ll go from there.” That was extremely difficult to hear, but it motivated us to prove him wrong. We were determined to make an impact.


Shortly after Logan, front left, started taking Kalydeco this June, she told her parents, "Mom and Dad, I feel so good." 

We started our Great Strides team, Logan’s Heroes, that following year. We felt good knowing that we were taking the steps to make sure our daughter could live a long, healthy and happy life.

What Makes Us Proud

Logan is very much like every other 6-year-old girl, with a particular love for drawing and swimming. In July, she won a gold medal in our first-ever family Olympics when she broke a record of jumping into a lake 100 times. Logan’s strength, courage and perseverance are an inspiration to us all. She doesn’t let CF get in her way.

Our Biggest Challenges

Logan has always been a trooper when it comes to her daily treatments. Each day she takes about 45 pills — which she started swallowing at age 2½ — and uses her nebulizer and vest twice a day. Altogether, her treatments take at least two and a half hours each day.

One of our biggest challenges is trying to maintain the structure of a CF lifestyle while also allowing Logan to enjoy a normal life. She’s trying so hard to fit in with everyone else, so it’s tough when we have to cut her playtime short because she has to do her treatments.

But we will do whatever it takes to make sure she stays as healthy as possible — which includes enrolling her in clinical trials. Logan keeps a positive attitude about them, and at her last doctor’s visit she amazed us all when she asked the nurse, “I’m helping other kids with CF, right?”

Our Thanks

We really couldn’t do everything we do without the support of Patrick Kirby at the CF Foundation’s Dakotas Office. We’d also like to thank our CF care team at the University of Minnesota Fairview clinic. They are phenomenal.

Tips for Other Great Strides Teams

We know from experience that it’s easy to get overwhelmed. So take it easy, and take things one step at a time. Start off with goals, like getting your friends and family to join you. You’ll notice as the years go on that your network will continue to expand as word trickles down to acquaintances, friends-of-friends and even complete strangers. Don’t feel bad about asking for money — we’ve got living proof about why we raise the money we do.

Our Dream

On June 18 of this year, Logan started taking Kalydeco. Our most recent trip to the doctor confirmed our hopes that the treatment is working. She was healthier and her digestive system had improved. The other day Logan told us, “Mom and Dad, I feel so good.”

This gives us even more motivation to raise as much money as possible. So, now, we’re planning for the second annual Fargo Brewer’s Ball, where our chapter hopes to net at least $50,000. We’re not going to stop fundraising until we find a cure for all people with cystic fibrosis and can move onto the next thing — that’s our dream.

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