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Ultimate Golfers Raise Funds and Awareness for Cystic Fibrosis Foundation

November 27, 2013

UGE 2013

Anna Villani, Pat Villani and C. Richard Mattingly, executive vice president and COO of the CF Foundation, congratulate Nick Van Newkirk, the 2013 UGE Giovanni Villani Champion. The championship is named after Pat’s son and Anna’s brother, Giovanni Villani, a golf enthusiast who lived courageously with CF until the age of 14.

More than 100 golfers teed off to help support the search for a cure at the Cystic Fibrosis Foundation’s 19th annual Ultimate Golf Experience, held at Pelican Hill Resort in Newport Coast, Calif.

The Foundation’s premier golf tournament spanned five days and raised more than $640,000 to help support the search for a cure for cystic fibrosis.

“Year after year, I am amazed by the generosity of so many wonderful friends and volunteers who help make this event truly memorable,” said C. Richard Mattingly, executive vice president and chief operating officer of the Cystic Fibrosis Foundation. “This special group raises awareness and provides critical support of our search for a cure.”

Back to Black

After enjoying friendly games on Pelican Hill’s pristine greens, guests retired to the resort’s Pacific Ballroom for gourmet meals and nightly entertainment featuring longtime friend of the Foundation and honorary trustee Lewis Black.

For nearly 20 years, Black has volunteered his time and comedic talents at the event, sharing with guests his contagious spirit and drive to advance the Foundation’s mission. This year, Black was also joined by comedians Kathleen Madigan and Jeff Stilson and singer/songwriters Victoria Shaw and Mark Hudson, as well as television host/songwriter and CF dad, Matt Rogers.

Bid for a Cure

For many, the highlight of the tournament came when Stacy Motenko, a 27-year-old with cystic fibrosis, delivered an inspiring Bid for a Cure speech.

Stacy, the 2013 recipient of the CF Foundation’s Alex Award, grew up fighting lung infections and spending time in and out of hospitals, but she never let her disease hold her back. She graduated with honors from the University of California at Santa Barbara, spent time travelling in Australia and now works as a pharmacy patient advocate helping others with CF get access to the care they need.

“Despite the immense challenges that CF has brought me, my parents and I refused to accept the doctor’s prognosis that I would not live to see adulthood. I turned 27 last week and I celebrated a milestone that I never thought possible,” Stacy said. “I hope you can see how you are making a difference by being here tonight and supporting the mission of the CF Foundation. You are helping to change the course of this disease.”

Honors and Awards

The event also offered participants the opportunity to recognize volunteers who helped make UGE a success. The winner of the tournament, Nick Van Newkirk, received this year’s Gio Award, named in honor of Giovanni Villani, a golf enthusiast who lived a courageous life with CF until the age of 14.

Mark Marra was presented with the Sheri Mount Champion for a Cure Award, named in memory of the late event co-chair for her passionate commitment to the fight against CF.

The Foundation would like to thank event chair:

  • David Mount

Outstanding corporate partner:

  • American Airlines

And major sponsors:

  • The Huggins Family
  • Roche Bros. Supermarkets

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.