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Great Strides Great Stories Header

This feature focuses on a special person or team who played an integral role in the 2013 Great Strides walks. We hope you’ll find this story to be inspiring as we continue to make Great Strides in our efforts to find a cure for CF!

Roy Ice – Julie's Dream Team

Walk: Louisville, Ky., walk held May 18, 2013
Chapter: Kentucky/West Virginia Chapter
Julie’s Dream Team led by Roy Ice and his wife, Julie, who has CF.
Impact: Raised more than $123,000 so far in 2013

Why I Walk

Julie Ice

Julie Ice was diagnosed with cystic fibrosis when she was 23 after battling lung infections for most of her life. Julie and her husband, Roy, started a Great Strides team in 2010 and have raised more than $123,000 in 2013.

Julie was diagnosed with CF when she was 23. She suffered from what doctors thought was reoccurring bouts of pneumonia. Not long after we were married, she was taken to the hospital again. This time, a young doctor stepped into the room, looked at her X-rays, and said, “That looks a lot like cystic fibrosis.”

The diagnosis got us on the road to viable treatment options, and a few years ago Julie had a bilateral lung transplant.

My Biggest Challenge

As a husband, it was devastating to learn about CF and the prognosis that comes with it. At the time, the life expectancy for someone with CF was 29, so we got busy living. It’s difficult to go from being a young, carefree newlywed to someone who has to watch his wife go through medical appointments, treatment options, hospitalizations and surgery.

How We Fundraise

We work with businesses like Buffalo Wild Wings, Papa John’s and Pat O’Brien’s to set up special proceeds nights.

Julie Ice

Roy and Julie Ice fundraise by getting the local community involved in Great Strides. “By asking friends and family to come out and have a burger with you, you are able to make an impact that goes beyond just asking for money. You are establishing connections and building relationships,” Roy said.

We don’t ever ask people directly for money. Instead, we ask people to help support the search for a cure by going out, having fun and living their lives. And it’s working.

In addition, I’ve written a book about our story: Julie: The Courage to Breathe and I will be making a personal donation to the Foundation from the sales of the book.

What Makes Me Proud

My wife gets up every day and works at keeping herself healthy. She seldom complains and she really values life. I’m proud of the way she has tackled this disease. She just doesn’t know how special she is. Anyone who knows her loves her.

Tips for Other Great Strides Teams

The key is to have fun. If it’s not fun, it’s work. By asking friends and family to come out and have a burger with you, you are able to make an impact that goes beyond just asking for money. You are establishing connections and building relationships.

My Dream

My dream is to be able to look my wife in the eye and say, “We did it.” I want to realize her dream, which is a cure for all people with CF. I think we’re getting there.

Learn More

Form a Great Strides walk team today!

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.