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British Medical Journal Supplement Reports on
“Remarkable Era” of Improvement in Cystic Fibrosis Care

April 3, 2014


The story behind how people with CF are living longer lives is detailed in this report on CF healthcare improvement.

A decade of strategic efforts to improve care has played a profound role in improving the quality and length of life for people with cystic fibrosis in the United States, according to a series of reports published in the April issue of BMJ Quality & Safety (formerly the British Medical Journal).

During this “remarkable era,” the CF Foundation launched an aggressive and innovative program to partner with CF care experts nationwide to test and adopt healthcare improvement strategies in Foundation-accredited CF care centers.

The BMJ supplement, Ten Years of Improvement Innovation in Cystic Fibrosis Care, includes key strategies proven to improve health
outcomes, such as:

  • Fostering patient and family involvement in improving care;

  • Using patient registry data to track and improve outcomes; and

  • Encouraging collaboration between care centers to promote best practices and standardization of care across centers.

“As the mother of an adolescent with cystic fibrosis, I’m grateful for the CF Foundation’s leadership in creating a culture that sets the bar high and strives for exemplary care,” said Kathryn Sabadosa, author of one of the reports in the supplement.

The supplement was co-edited by Bruce Marshall, senior vice president of clinical affairs of the CF Foundation, and David Stevens, adjunct professor of the Dartmouth Institute for Health Policy and Clinical Practice.

The Foundation’s healthcare improvement programs have been recognized by the National Committee for Quality Assurance and the Alliance for Pediatric Quality.

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The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.