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Three States Recognize May as CF Awareness Month

May 29, 2014

Governor Deal Proclamation

Georgia Chapter volunteers and staff (L-R) Addison O’Steen, Amanda Keuler, Vicki Nix, Linda Murphy, Kehl Mackesey, Amanda Gilbert, Molly Taggart, Grace Mackesey, Tim Mackesey, Scot Rittenbaum, Carey Mackesey, Amy Alvarez, Clay Snellings and Linda Blakely celebrate a resolution in Georgia recognizing May as CF Awareness Month with Governor Nathan Deal.

Thanks to the efforts of dedicated Cystic Fibrosis Foundation volunteers, legislatures in New Hampshire, Georgia and Pennsylvania have passed resolutions officially recognizing May as CF Awareness Month.

CF Foundation State Advocacy Chair Tim Guidish and advocate Paula Garvey led the way in New Hampshire where Governor Maggie Hassan signed a proclamation making the state the first to officially recognize May as CF Awareness Month in 2014.

“My 16-year-old daughter has CF, and I felt I needed to get more involved in state advocacy efforts. I thought his would be a great way to raise awareness about the search for a cure,” Garvey said.

In Georgia, a resolution declaring May as CF Awareness Month also recognized the efforts of the CF Foundation and its mission to find a cure for the disease. The efforts in that state were headed by CF mom Carey Mackesey.

Ten-year-old Justin Shopp, who inspired legislators in Pennsylvania, received a standing ovation at the state’s capitol building in Harrisburg the day that state’s resolution was signed.

“Raising awareness about this devastating disease and the search for a cure is vital to our mission,” said Robert J. Beall, Ph.D., president and CEO of the CF Foundation. “I applaud these volunteers — and the states they represent — for their dedication to the CF cause.”

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