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Rep. Edward Markey to Receive Award for Cystic Fibrosis Advocacy Work

(Washington, D.C.)— Representative Edward J. Markey (D-MA-7th) will receive the Cystic Fibrosis Foundation’s highest award, in honor of his efforts to educate members of Congress about cystic fibrosis and spur action on issues that affect the CF community.

“Representative Markey is at the forefront of health reform in Congress,” said Robert J. Beall, Ph.D., president and CEO of the CF Foundation. “His leadership in strengthening research and increasing awareness of CF on Capitol Hill is accelerating our work to find a cure for this life-threatening genetic disease.”

The honor, known as the “Breath of Life” award, will be given at the 51st Annual Dinner of the Foundation’s Massachusetts/Rhode Island Chapter on Saturday, Feb. 10.

In 2006, Rep. Markey and Rep. Cliff Stearns (R-FL) founded the Congressional Cystic Fibrosis Caucus to increase awareness about issues of importance to people with cystic fibrosis. These issues include the need for increased federal support of research funding, improved access to specialized care, and a reduction in the high cost of medicine for CF patients.

Rep. Markey also co-sponsored House Resolution 357, which recognized the goals of National Cystic Fibrosis Awareness Month to increase public awareness and understanding of CF and support research to find a cure for the disease.

Cystic fibrosis is one of the most common life-threatening genetic diseases. It causes the body to produce abnormally thick, sticky mucus that results in chronic lung infections and impaired digestion. Fifty years ago, few children with CF lived to attend elementary school. Today, because of CF Foundation-supported research and care, the predicted median survival age is nearly 37 years.

About the Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is the leading organization in the United States devoted to curing and controlling cystic fibrosis. Headquartered in Bethesda, Md., the Foundation has more than 80 chapters and branch offices throughout the country and supports and accredits a nationwide network of more than 115 care centers, which provide vital treatments and other CF resources to patients and families. For more information, visit

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