Cystic Fibrosis Foundation - Click here for homepage
Stay Informed  |  Volunteer  |  Clinical Trials

In This Section

Quick Links

Find a Chapter

Get Assistance

Get Assistance - Cox Boys
We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

Join us on Facebook!  Facebook 
Follow us on Twitter!   Twitter
Follow us on Instagram!  Instagram 
Add us to your circle in Google+!

Google+ 

Subscribe to our channel on YouTube!  YouTube  


 

 

Print  

Baltimore to Host Largest Gathering of CF Scientists and Clinicians in the World

Historic Time in Treatment of Rare Disease as Promising Drugs Reach Phase 3 Trials

October 19, 2010

(Bethesda, Md.) – In the largest meeting of its kind, nearly 4,000 doctors, scientists, researchers and caregivers will meet in Baltimore, Md., Oct. 21–23, 2010, to present the latest information and advancements on cystic fibrosis (CF) drug development, research and care.

The conference comes at a critical point in the history of cystic fibrosis, a fatal genetic disease that causes life-threatening lung infections and premature death. For the first time, drugs that treat the underlying cause of the disease have reached the final stages of clinical testing. Up to this point, only drugs that treat the symptoms of CF have been available to patients. Therapies in Phase 3 include: ataluren, Bronchitol, denufosol, and VX-770.

Key topics of the conference include:

  • Attacking the core defect in CF from every angle;
  • The power of patient and family involvement in improving care;
  • Grappling with adult issues as people with CF live increasingly longer; and
  • Advancements in inhaled antibiotics for CF.

An estimated 30,000 people in the United States have cystic fibrosis, and about 70,000 people worldwide. Ten million Americans are unknowing carriers of a defective CF gene. Fifty years ago, most children with CF died before reaching Kindergarten. Today, because of Cystic Fibrosis Foundation-supported drug research and care, people with CF are living into their 30s and beyond.

WHAT: 

The 24th Annual North American Cystic Fibrosis Conference, the largest international gathering of cystic fibrosis research scientists and clinicians.

WHEN & WHERE: 

Thursday, Oct. 21 – Saturday, Oct. 23, 2010, at the Baltimore Convention Center, Baltimore, Maryland.

KEYNOTE SPEAKERS:

Thursday, Oct. 21 at 4:20 p.m. – Eric J. Sorscher, M.D., University of Alabama, Birmingham, Alabama: “Pipeline: Airway Surface Liquid Modulation.”

Friday, Oct. 22, 9:00 a.m. – David. A. Stoltz, M.D., Ph.D., University of Iowa Hospitals, Iowa City, Iowa: “What New Models are Teaching Us about CF.”

Saturday, Oct. 23, 9:00 a.m. – Donald Berwick, M.D., Administrator, Center for Medicare and Medicaid Services, U.S. Department of Health and Human Services: “Transforming CF Healthcare: Partnerships for Life.”

About the Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. The Foundation funds more CF research than any other organization and nearly every CF drug available today was made possible because of Foundation support. Based in Bethesda, Md., the Foundation also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease.

Media Contact

  • Laurie Fink, director of media relations: (301) 841-2602; lfink@cff.org.

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.