A Little Help Goes a Long Way
Growing up, Scott Buchanan, who has CF, spent the majority of his time outdoors. His parents urged him to live his life to the fullest, but also instilled in him the importance of adhering to his CF treatments.
Thanks to the CFPAF, Scott Buchanan,
age 30, who has CF, can pursue his
dream of earning a doctorate in wildlife ecology. “If it weren’t for the CFPAF, it
wouldn’t be possible for me to continue
my education,” Scott says.
He went on to attend Rutgers University in New Jersey, where he graduated with a bachelor’s degree in Ecology and Natural Resources and a passion for wildlife conservation.
Scott yearned to continue his education and pursue a master’s degree; however, as he began assuming more responsibility for his CF care, he faced difficulty affording his treatments.
“Things changed when I became an adult,” Scott, now 30, remembers. “Most colleges offer insurance to their students, but it’s not really meant for people who have CF. I was barely getting by.”
With his treatments costing from $30,000 to upwards of $50,000 per year, Scott was continuously struggling to meet his monthly out-of-pocket costs for his prescriptions and was left with a hard decision — either abandon his education or skip his treatments.
|About the CFPAF
Launched in 2008 and funded by contributions from the pharmaceutical industry, the Cystic Fibrosis Patient Assistance Foundation is a nonprofit subsidiary of the Cystic Fibrosis Foundation that helps patients and their families living with cystic fibrosis afford the medications and devices they need to manage CF complications.
CFPAF staff can help families cut through complex insurance and legal issues, directing them to additional organizations and programs when needed.
For more information, visit www.cfpaf.org or call 1-888-315-4154.
He didn’t view the latter as much of an option.
Asking for Assistance
Determined to continue his schooling, Scott looked to the CF Patient Assistance Foundation (CFPAF), a non-profit subsidiary of the Cystic Fibrosis Foundation, for help affording his medications. He was met with open arms.
“The application process was easy — very straightforward and streamlined. They didn’t ask me for anything they didn’t need,” Scott explains.
He immediately began receiving assistance for Pulmozyme® and in the last year added on Pancreaze®.
“There have been several instances where I’ve worried that I wouldn’t get my medication on time and the CFPAF always helps me to work that out,” Scott says. “One time a CFPAF rep even called the pharmacy for me. They just continuously go above and beyond.”
Chasing His Dreams
As Scott Buchanan, 30, who has CF,
entered into adulthood and began
assuming more responsibility for his CF
care, he faced difficulty affording his treatments. “I was barely getting by,”
Thanks to the CFPAF, Scott didn’t have to choose between his education and his treatments.
In 2012, he graduated with a master’s degree from Montclair State University and today is pursuing a doctorate in wildlife ecology at the University of Rhode Island.
“I’m doing exactly what I want to be doing right now. If it weren’t for the CFPAF, it wouldn’t be possible,” Scott says.
He urges other adults with cystic fibrosis to look into the CFPAF when they’re trying to get on their own two feet. “I want them to know that they don’t have to settle for a job strictly for health insurance. They can pursue their dreams, too.”
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