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Executive Director:
Ms. Martine Denis
Greater New York Chapter
Long Island Office
One Huntington Quadrangle
Suite 2S13
Melville, NY, 11747
T: (516) 827-1290
F: (516) 827-1295
E: long-island@cff.org

Get Assistance

Get Assistance - Cox Boys
We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

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Greater New York Chapter
Long Island Office

Welcome!

Welcome to the Cystic Fibrosis Foundation, Greater New York Chapter – Long Island.  The Cystic Fibrosis Foundation (CFF) is the world’s leader in the search for a cure for cystic fibrosis (CF).  We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support.  Our mission is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
Great Strides
2014 Nassu County Great Strides Walk 
To achieve our goals, we partner with supporters who share our common vision of a world without cystic fibrosis.  Together, we raise awareness and funds by holding fundraising events in Nassau and Suffolk Counties.  We hope that you will share in our cause by joining an event committee; recruiting companies, families and friends to start Great Strides walk teams; signing up to bike in our Cycle for Life event;  volunteering time at our office; or joining our Young Professional Leadership Committee.  Your involvement will help us reach our goals.  Please take a moment to visit our events calendar below.
            
                                    Read more: Doorway to a Cure 
            
DNA
                           


View the video from our 2013 Scientific Update.


Lucy, Age 4

Lucy - Age 4
(Click here to learn more about me!) 
 
 
2014 Board of Directors

Calendar of Events

Event Photos

Volunteer Events

YLC

Speak Out. Get Involved. Inspire Action.

Advocacy is just one more way you can
make a difference for people with CF.
Inspire your elected officals.

 "The messages of families living with CF are a powerful call to action that resonates in Washington, DC and reminds all of us of the urgent need to find a cure for this devastating disease. As co-chair of the Congressional Cystic Fibrosis Caucus, I can tell you that elected officials need to hear from their constituents dealing with CF so they can understand how you feel and how important this issue is."
                                                         --Congressional
Cystic Fibrosis Caucus Chair Edward Markey (D-MA)
Click HERE to learn more about advocacy! 
Click HERE to view the Teen Advocacy Day article. 



Volunteer!

We have moved!
One Huntington Quadrangle
Suite 2S13
Melville, NY 11747

Visit the other Greater New York offices' websites:
Westchester and Manhattan


Follow us on Facebook and Twitter!

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Please join us at our 2014 Great Strides Kick-Off Party!
February 20th, 2014
Click 
HERE for more information!

 

Chapter Events

Great Strides

Go

Register Today and Take Great Strides!

Join us for a day of fun and camaraderie as tens of thousands of people across the country take Great Strides! Click here to see where there are walk sites in our area.



Events  - (1 to 1 of 1 matches)
September 2014
  09/20/14
  
 
End of Events 
 

In the Spotlight

Cyster act
Heroic 'Cyster' Act
Heroic 'cyster' act for six friends who received double lung transplants and are triumphing over lifelong battle with cystic fibrosis. Read more! 
Christmas Carol
Visit the John Engeman Theater in Northport and support CFF!
Receive $5 off the regular ticket price for any performance during the 2012-2013 season and the Foundation will receive $10 per ticket. Click here to view shows and dates. Visit their website to order your tickets. Use code "CFF" to receive your discount at time of purchase. 
Captial
Greater NY Chapter Teens Walk the Hills of Congress
Click here to view the Teen Advocacy Day article.
Beth GS
Beth Israel’s Cystic Fibrosis Care Center Wins Competition!!
The staff of Beth Israel’s CF Care Center rallied behind team leader Lashanda Dandrich in response to a Great Strides Care Center Challenge issued by the GNY Chapter. Click here to read more!

News and Events

07/22/2014   CF Foundation Provides New Health Education Resources on Infection Prevention and Control for CF Community
07/11/2014   CF Foundation Featured at Congressional Hearing on Patients’ Involvement in Drug Development
07/02/2014   Updated Infection Prevention and Control Guidelines for Cystic Fibrosis Now Published Online
07/01/2014   CF Foundation Teen Advocates Share Their CF Stories with Members of Congress
06/24/2014   Phase 3 Combination Studies of Ivacaftor (Kalydeco) and Lumacaftor (VX-809) Show Positive Results in Most Common CF Mutation
Make a donation to the Cystic Fibrosis Foundation
Donate Now to the  Annual Fund
It's time to take Great Strides! Sign up today!
Become a Volunteer and help add tomorrows every day for people with cystic fibrosis.

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.