Great Strides - Tulalip: Taking Steps To Cure Cystic Fibrosis, Saturday, July 17, 2010 at the Tulalip Resort Casino Amphitheatre, Check-in is @ 9am, Walk starts @ 10am, The walk is a 3 mile coarse, which is bike & stroller friendly. There is no obligation to complete entire coarse. There will be children's craft activities, games & prizes, a live DJ, complimentary lunch & a HUGE raffle drawing for some AMAZING prizes!!
FOR MORE INFORMATION OR DIRECTIONS, PLEASE CONTACT ME AT firstname.lastname@example.org or (425) 343-9447.
Cystic fibrosis (CF) is a devastating progressively fatal, genetic, multi-system disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a huge difference, extending the quality of life for those with CF. When the CF Foundation was first established in 1955, children born with this disease weren't expected to make it to their first day of elementary school. Due to the amazing work of this Foundation, its efficiency with its funds, donors, volunteers, sponsors and the community support, I am proud to say that nearly 50% of the CF population is over the age of 18 and the average life expectancy is now over 37 years!! However, their work is not done, as at least one precious life is lost to CF every day. I am on a mission to help change that. Since we continue to lose precious lives to CF every day, your help is desperately needed, now more than ever, to ensure that a cure is found sooner - rather than later.
Our seven-year-old daughter, Brenna, suffers from this disease. The genetic defect causes an inbalance between sodium chloride and water within the body, making the mucus in the body unusally thick & sticky. This thick, sticky mucus blocks the Pancreas from delivering natural enzymes to help break down & absorb foods & nutrients. Brenna has this, it's called Pancreatic Insufficiency. She cannot digest food without the help of special pills she must take every single time she eats. Currently, she takes over 25 pills per day to aide with digestion. (That's approximately 150 per week!!) The thick, sticky mucus also blocks the airways in the respiratory system, making it difficult to breathe and causing chronic inflammation & infection. Eventually, chronic infections and bad bacterias take over & colonize the lungs, leading to the need of a double lung transplant or a premature death from respiratory failure or from other complications due to Cystic Fibrosis. Brenna has had her share of ups & downs. There was a time when we were uncertain about her future because her health declined so rapidly and the doctors couldn't figure out what was colonizing her lungs. Eventually they discovered the culprit and after fighting the serious infection with strong antibiotics for a year and a half, she was able to put the infection into a remission. (THANK GOD!!) The last year or so, fortunately, Brenna has been pretty healthy. However, I don't want this disease to claim the life of my precious daughter EVER!! Please help!!
To learn more about Cystic Fibrosis or the Cystic Fibrosis Foundation, please visit : www.cff.org
Great Strides is the Cystic Fibrosis Foundation's largest and most successful national fundraising event. This year, I'm walking in the Great Strides walk at the Tulalip Casino & Resort Amphitheatre on Saturday, July 17, 2010. Please help me meet my fundraising goal of $5,000 by sponsoring me. Your generous gift will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care, education and the search for a cure. Making a donation is easy and secure! Just click the "Click to Donate" button on this page to make a secure online donation that will be credited to my team. You can also make a check out to the "Cystic Fibrosis Foundation - or CFF for short" and mail them to:
Brandy Krug c/o Brenna's Butterflies 1824 3rd Street Marysville, WA 98270
Any amount you can donate is greatly appreciated! Thank you SO much for taking the time to read this and for your generousity. With your help, generous contributions and continued love and support, you can help make CF stand for Cure Found!!
Brandy Krug, Co-Chair & Co-Coordinator Great Strides - Tulalip: Taking Steps To Cure Cystic Fibrosis, Team Leader for team Brenna's Butterflies, ". . . adding tomorrows every day."
SPECIAL THANKS TO PORT OF SUBS (GURPREET DHILLON) FOR DONATING SUB SANDWHICHES FOR OUR EVENT IN SUCH SHORT NOTICE!! PORT OF SUBS HAS AMAZING CUSTOMER SERVICE AND OFFERS FRESH SUBS, THEY ACTUALLY SLICE THE MEAT RIGHT IN FRONT OF YOU!! THEY ALSO OFFER CATERING. (JUST AS A SIDE NOTE - SUBWAY WOULD NOT OFFER US ANY KIND OF PRICE BREAK OR DONATION). NEXT TIME I GET HUNGRY FOR A SUB, MY CHOICE WILL DEFINITELY BE PORT OF SUBS!! THEY ARE LOCATED AT 8825 34TH AVE, STE. I TULALIP, WA 98271, WITHIN THE QUIL CEDA VILLAGE OUTLET ACROSS FROM BOB'S BURGERS & BREW AND WALMART. PLEASE SUPPORT THEIR BUSINESS - THEY ARE UNDER NEW MANAGEMENT AND I AM TRYING TO HELP THEM SPREAD THE WORD THAT THEY ARE FRIENDLY, EFFICIENT AND ABOVE & BEYOND!! THEY SUPPORT THEIR LOCAL COMMUNITY!! - THANK YOU PORT OF SUBS-