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If you are just getting to know Nolan - he is a SMART, VIBRANT 3 year old, who happens to have Cystic Fibrosis (CF). He was diagnosed when he was few weeks old, to the complete shock of his family. BUT, over the last 3 years, it has become a part of him and a part of our every day life.
Every day, Nolan has to take pills/enzymes before he eats or drinks anything. He's quite the pro at it now - he swallows them like they're candy! He also takes a daily multivitamin geared just for kids with CF. Nolan also does chest therapy twice a day for 30 minutes with a special vest/machine to help clear his airways of the extra mucous in his lungs. This is coupled with a medicine that he breathes in through a nebulizer to help thin the mucous that clogs his lungs. We also added a new medicine this year after completing a study trial - hypertonic saline. It was great being a part of the trial - being able to help in any way we can. Don't be fooled - all this extra stuff has not slowed him down one bit!!! Nolan visits a special CF doctor every 3 months now to monitor his progress and get special labs drawn to check for bacteria growing in his lungs.
He had a record year this year again - ALL CLEAR throat cultures and steady weight gain!!! Nolan is in the 80th percentile and growing steadily!
Great Strides is the Cystic Fibrosis Foundation's largest and most successful national fund-raising event. This year, I'm walking in the Great Strides walk at the Charlottesville, VA walk on April 30th. Please help me meet my fund-raising goal by sponsoring me. Your generous gift will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education.
Making a donation is easy and secure! Just click the "Click to Donate" button on this page to go to make a donation that will be credited to my team. Any amount you can donate is greatly appreciated!
Cystic fibrosis (CF) is a devastating genetic disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF. However, we continue to lose precious lives to CF every day. That's why your help is needed now more than ever to ensure that a cure is found sooner - rather than later. To learn more about CF and the CF Foundation, visit www.cff.org.
Together, we can make a difference in the lives of those with CF! Thank you for supporting the mission of the CF Foundation and Great Strides!
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