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Hello all! I know you may question “why help out with CF” or may just have other, equally important causes that you benefit. Right now there are some really incredible drugs in the pipeline that are farther in the FDA testing, than any other CF drug has ever been. We are realistically 2 to 5 years away from something that will make part, if not all of the CF patients’ body work properly. There are already a couple coming through that seem to be making one strand of CF almost nonexistent. Over the past 4 years we have raised around $100,000 for the Cystic Fibrosis Foundation and just under $20,000 for the CF clinic at Children’s Mercy Hospital, in addition to the toys you all have donated for our boys’ birthdays. I would like to say a very big thank you and invite you to share this information with others. Let them know there is a worthy cause where you can actually see your donation dollars make a difference. Let them know that you know a boy who was put on inhaled Gentamicin this year because it has been shown safe and effective in trials that your money helped facilitate.
You have a lot to be proud of!
I know that many people have lost jobs, had family hardships, moved or had any other number of things happen that put them in a spot where they cannot donate money this year. I understand that and can definitely appreciate it. If you are in such position, please just spread the word about this cause, this boy and this disease that will hopefully soon be something in our past. However, if you are still able to donate $1, $1,000 or any other given numbers, please do so. These next few years will be the most important time to blow the doors off this campaign! As I mentioned earlier, there are so many new possibilities being tested, and they all need funding to keep the trials going! I ask you for my son Lyman and others out there like him, please don’t give up now. Many of you began this fight with us in 2005 and waited in the yard with signs as we pulled into the driveway, with Lyman, for the first time on his 100th day of life. Some of you have only met us and/or Lyman only recently. Please don’t let us moving in 2007, changing schools, have been out of touch, just met each other or any other number of reasons people may feel disconnected, get in the way of helping fight Cystic Fibrosis. Raising money and creating awareness that raises money is the only way this fight can keep going! All your donations are tax deductable and 90 cents of every dollar donated to the Cystic Fibrosis Foundation goes towards this fight! Coming up this year, I am working on a dinner night at RC’s in Martin City, MO and an event with Gail’s Harley Davidson, both of which I will announce when details are final. Currently, May 14th, 2011 is the Great Strides Walk at Theis Volker Park off the Plaza. Registration starts at 9:00am and we would love to see you there supporting us. It is an event that takes up about half the day, so plan your day accordingly if you come. If you cannot come, please make a donation of any monetary amount or simply help spread the word!
Thank you
Merrill Staton (Husband to Shelley and Father to Hamilton and Lyman)
www.STATONVILLE.com
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| Ginny |
Fisher |
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| Caryl |
Dukes |
Your family is near and dear to our heart..To look at L yman..you would never know the turmoil he go more »» |
| Megan |
O'Meara |
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| Diana |
Gattermeir |
Hoping this small donation will help towards a cure for this disease and help the strong little guy, more »» |
| Paula & Jim |
Gleason |
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| Christine |
Clark |
Stay strong Lyman!! |
| Darla & Fielding |
Staton |
You are our Hero Lyman! We love you! Uncle Fielding, Aunt Darla, Sheridan, And Turner |
| Cheryl |
Page |
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| Stuart |
Hayes |
Keep on truckin, Lyman. Love to all the Statons from the Hayes family. |
| Kaleb And Katie |
Hale |
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| Sandee |
O'Dowd |
We love you and pray for Lyman everyday. I showed Tyler Lyman’s video today and he kept sayin more »» |
| Beth |
Beach |
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| Sue |
Baldwin |
Stay healthy and strong, Lyman. You are an awesome nephew and I love you bunches!!! |
| Janet |
Smith |
We pray for a cure for sweet Lyman and all those affected by CF and cudos to you Shelley and Merrill more »» |
| Gregg |
Davidson |
Good luck with the walk and I’m with you on the quest for ’the cure’. |
| Teresa |
Buehler |
Stay strong little guy.....Let’s all pray for a CURE! |
| Sarah |
Calini |
Sioux Chief Mfg. is proud to suppor Lyman and CFF’s mission. |
| Brandi |
Marshall |
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| Kacey |
Farmer |
Lyman, you are one amazingly brave little guy! Shelley and Merrill, I am in awe of your tenacity a more »» |
| Frances |
O'Dowd |
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| Tim and Sharon |
Bolby |
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| Andrew |
Cullen |
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