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OK, I KNOW THAT MOST OF YOU GOT THIS LAST YEAR, SO IF YOU DON'T WANT TO READ THROUGH IT ALL AGAIN, THEN THAT IS OK. BUT, I NEED YOUR HELP AGAIN....In the past year Megans health has gotten worse. She got the ONE infection that is SO BAD for CF patients to get..We really need your help more than ever now, there is NOT a cure for this infection, and it can cause her health to deteriorate quickly . We are in a race with time!!! PLEASE donate whatever amount you can today....so Megan and other CF kids can have A LOT more tomorrows.
Cystic Fibrosis Foundation's largest and most successful national fund-raising event. This year, we are walking in the Great Strides walk on July 23rd. We are walking for Megan Andersen, the daughter of my dear friends Kim and Dave Andersen.
I would like to tell you a little about Megan…she loves to ski, she loves to ride her mountain bike, and she likes things organized and keeps the neatest room you will ever see. She tells it like it is, and is as ornery as anyone. She is a normal 11 year old. Normal, except she has Cystic Fibrosis and might not live to see adulthood. She is normal, except she takes over 18 different medications a day which include 5 antibiotics, three inhaled medicines, steriods, and many other pills, too many to name, totaling over “60 pills PER DAY”. She is normal, except EVERYTIME she eats a meal or a snack she has to take 7 enzyme capsules. She is normal, except she has to do what is called “treatments” twice a day, every day, which is where she wears a vest that is plugged in so it shakes her, loosening up her lungs, for 20 minutes at a time. She is normal, except she has to sleep at night with Oxygen. She is normal, except she has to go into the hospital 2 times a year minimum for “tune ups” of I.V. drips and two weeks in the hospital, this is if she is doing well, or it is for much longer. She is normal, except she has had 3 nose surgeries to clean out polyps, two lung surgeries and too many hospital visits to mention…they know her much too well at Children’s Hospital.
OK, so now you know Megan a little better. Now you know the dark side of her life. But you still cannot even imagine her life, its restrictions and what her mother and father deal with on a regular basis. You know when one of your kids gets sick with a bad cold? How you worry, how your heart aches looking at them not feeling good, how you have to take such close care of them….Well, times that times 100 and that is what Megan and her parents deal with on a DAILY basis.
We will be taking part in a walk to raise money for CF research. The walk this year will be July 23rd in Dillon. We are asking for sponsorship to raise money for research for this fatal disease. The CF Foundation reports that over 90% of all donations for this walk go toward research for CF and was voted “Best in the Industry”. We hope you will consider participating in this cause. No donation is too small. Megan is now in 6th grade and is still enjoying skiing, biking, skyping( is that really a word?), talking on the phone and being with her friends. While her parents work very hard to be sure Megan can lead a very "normal" life, this year has provided some challenges. Megan has already had to have three tune-ups just this past year and is currently back in the hospital RIGHT NOW due to some complications with her new feeding tube. The permanent g-tube was put in place last month to assist Meg in gaining weight because her BMI had dropped to below 10%. This additional weight is needed to help her body function better and hopefully fight the bacteria growing in her lungs. She continues to have a very positive attitude and love for life! We all try to follow this attitude every day. Currently, Megan does 30 minutes of lung clearance therapy in the morning and at night, takes over 60 pills a day, g-tube feedings throughout the night and sleeps with oxygen- when she is healthy! While these treatments are all time consuming, and at times can be very annoying to Meg, without them she would not be able to enjoy the many activities she loves. As you can imagine the research and trials for these medications and therapies are very expensive. Please help us raise money for CF research to help Megan and the other children and adults living with CF! There are many ways you can help....
We need to stop this disease; we need more money for more research. We need Megan to grow up and grow old. We need “Normal” for Megan. And I believe they are making Great Strides toward curing CF every day. I believe Megan can grow old. I believe your donations can make a difference. So please, click below, make a donation of any size, help Team Radical Radeks make a difference. Because together, we can make a difference for Megan. But we need your help.
We know these are harder times now, but ANY amount will help. And if you can not donate, please take a minute to say a prayer and think a positive thought for Megan as she is not doing very well right now and needs all the positive thoughts she can get.
Making a donation is easy and secure! Just click the "Click to Donate" button on this page to go to make a donation that will be credited to my team. Any amount you can donate is greatly appreciated!
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