WELCOME TO ZOE'S Great Strides PAGE!!!!!

First of all, THANK YOU! Thank you if you are returning to Zoe's page from last year, thank you if you are brand new! THANK YOU!!

Zoe was in the hospital 4 times over an 11 month period this past year. During her first hospital stay, they did a chest ct scan. Unfortunately, this test result was not what we wanted to hear. She has Bronchiectasis now. This is irreversible dilation of part of the bronchial tree caused by destruction of the muscle and elastic tissue. The bronchi are dilated, inflamed, and easily collapsible. It is caused by bacterial infections in the lungs.

The admission in January was the hardest one yet for her. Over the course of 3 days, she had 4 PICC line attempts and blew 6 peripheral lines. Her veins have become too damaged.....we were not expecting this. The PICC team said there was nothing else they could do...our only option now was to have a Port Catheter placed in her chest. It is very hard as parents to have to make the decision to have a permanent marker of CF in their daughter. Her surgery went very well and she has adjusted to having her Port Catheter.

She also broke her arm and picked out a very pretty purple and red cast...first of our children to have one!! Due to the CF, she does not absorb calcium....so her bones are more brittle. Poor baby just can't catch a breath....literally...... We will continue with her treatments and therapies without fail....she has never missed a single one. We will continue to FIGHT this horrible, devastating disease that is trying to damage the insides of our little girl.

This past year she has started to realize the fact that she has CF. That she is different. She said to me one day..."Mom, you know what I wish?" To which I replied, "What, baby?" She said, " I wish I didn't have CF so I wouldn't have to do all these treatments, I could play instead." HEARTBREAKING for me. It is a sad time when they realize that everyone else doesn't spend 2-3 hours a day doing breathing treatments and chest physical therapy. Or that they don't take 25 pills a day just to digest their food.....PLEASE help us find a CURE for this devastating disease. Every single dollar counts!!!

There are many drugs in the CFF drug pipeline that are very promising! This is an exciting time to become involved with the CFF! New drugs and research are very expensive. We need your help!!!

Please consider donating today....or join our team & do your own fund raising! Nothing makes you feel better than knowing that you are helping a GREAT CAUSE!!

Great Strides is the Cystic Fibrosis Foundation's largest and most successful national fund-raising event. The Clay County Walk is April 28, 2012. Registration is at 8:00 a.m. with the walk starting at 9:00 a.m.

Making a donation is easy and secure! Just click the "Click to Donate" button on this page to go to make a donation that will be credited to The Zoe for Life team. Any amount you can donate is greatly appreciated!

Your generous gift will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education.

Cystic fibrosis (CF) is a devastating genetic disease that affects tens of thousands of children and young adults in the United States. Research and care supported by the Cystic Fibrosis Foundation is making a huge difference in extending the quality of life for those with CF. However, we continue to lose precious lives to CF every day. That's why your help is needed now more than ever to ensure that a cure is found sooner - rather than later. Together, we can make a difference in the lives of those with CF! Thank you for supporting the mission of the CF Foundation and Great Strides!

Thank you for adding tomorrows...........for Zoe.....and the 30,000 others fighting CF everyday!!!

Scott and Jada Ose

Make sure you watch and pass on Zoe's video....only takes 5 minutes of your time!

Zoe for Life

Also visit and pass on our web page www.zoeforlife.blogspot.com