Cystic Fibrosis Foundation - Clinical Trials Experiences

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Clinical Trials Experiences

Hear Their Stories

Watch the following videos to hear CF clinical trials participants and their families,
doctors and research coordinators discuss what it’s like to be a part of clinical trial.

Participants

College student Emily Perry talks about her positive experience with a cystic fibrosis clinical trial.

8-year-old Quinn feels good about being in a clinical trial for cystic fibrosis and encourages other kids to join one, too

Laura Taylor, a 32-year-old with cystic fibrosis, says
participation in CF clinical trials is necessary to get to a cure.

Family

Tracy enrolled her 8-year-old daughter, Quinn, in a clinical trial for cystic fibrosis.

Nicole shares her daughter Capri's CF clinical trial experience.

Doctors & Research Coordinators

Dr. Orenstein, a pediatric pulmonologist and CF doctor at Children's Hospital in Pittsburgh, emphasizes the need for people with CF to participate in clinical trials.

Dr. Pilewski, an adult pulmonologist and CF doctor at the University of Pittsburgh Medical Center, talks about what to consider when joining a clinical trial.

Research Coordinator Liz Hartigan talks about the need for clinical trial volunteers to help advance new CF treatments.

Dr. Geller, a pediatric pulmonologist and CF director at Nemour's Children's Clinic in Orlando says "this is the time" to participate in CF clinical trials. If CF patients won't do it, who will?