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Informed Consent

Get Key Facts about Volunteering for a CF Clinical Trial

Informed Consent PDF Cover
Download a printer-friendly guide to informed consent in CF clinical trials.

Choosing to volunteer in a CF clinical trial is a personal decision, and people often have questions about what they can expect. Through a process called informed consent, people with CF and their families can get all the information they need about a particular clinical trial.

The informed consent process will help you judge whether a CF clinical trial is right for you or your child.

Use the CF Foundation’s guide “Informed Consent” to help you begin talking with your CF care team about CF clinical trials you are interested in. Get tips to prepare for the conversation, learn how your or child’s rights are protected and find sample questions to ask the CF research team.

Updated 09/26/12 

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.