When the Cystic Fibrosis Foundation was established in 1955, most children did not live to attend elementary school. Today, the predicted median age of survival is in the late 30s, thanks — in large part — to the care provided though the national network of CF Foundation-accredited centers.
This network provides expert cystic fibrosis care for people living with the disease. In fact, the National Institutes of Health has cited the CF care center network as a model of effective and efficient health care delivery for a chronic disease.
The Foundation funds and accredits more than 110 cystic fibrosis care centers nationwide. This means that there are more than 260 clinics where children or adults with CF can get care. All programs, however, are staffed by dedicated healthcare professionals who specialize in the treatment of cystic fibrosis.
Each center undergoes thorough review by the CF Foundation’s Center Committee before it receives accreditation and funding. This review for accreditation occurs every year.
Besides taking care of people with cystic fibrosis, care centers also participate in CF clinical research and work to educate healthcare professionals about CF and the care people living with the disease require. Data from people with CF is collected in the national CF Foundation's Patient Registry, which is a rich resource for you, your CF health care professional and CF researchers to track the health of people living with CF in the United States.
CF Care Centers
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