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Blog Post

Navigating CF: Choosing an Insurance Plan

Navigating CF: Choosing an Insurance Plan is the first part of a new, interactive series that uses the knowledge and expertise of Cystic Fibrosis Foundation Compass case managers to guide people with cystic fibrosis, their families, and caregivers through topics specific to life with cystic fibrosis.

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Did You Know?

There are more than 1,700 different genetic mutations known to cause cystic fibrosis.

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Blog Post

Things You Shouldn’t Say to a Parent of a Child With CF

After my son was diagnosed with cystic fibrosis, I was stunned by some of the insensitive questions and comments I received from friends and family. Over time, I learned that their unsolicited feedback provided teachable moments that I hope to pass along to other families.

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Blog Post

New Developments in Clinical Research

Interested in learning more about the latest clinical research into issues such as infections, nontuberculous mycobacteria (NTM), and nutrition and gastrointestinal health? To find out what new, cutting-edge studies are addressing these cystic fibrosis-related complications, watch the following interviews with some of the leading researchers in these areas.

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Blog Post

Take Our 2019 CF Health Insurance Survey

Access to care, health insurance coverage, and cost can be challenging for people with cystic fibrosis. We want to hear from you. Take our 15-minute survey and tell us about your experience with health insurance.

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