Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Published on June 9, 2008
(Bethesda, Md.) -- The Cystic Fibrosis Foundation announced today that actress Mackenzie Rosman, the Foundation's National Honorary Chair for the CureFinders® school fund-raising program, will visit the top earning school for 2008 -- William Howard Taft High School in Woodland Hills, Calif. Students at the school raised more than $10,000 doing a simple coin collection.
“For me, the fight against cystic fibrosis is personal,” said Rosman who played Ruthie Camden on the CW's former television show 7th Heaven. “My stepsister, Katelyn, has cystic fibrosis, and last year she underwent a double lung transplant. Our family is grateful for the generosity of the students from Woodland Hills and their dedication to fighting this life-threatening disease.”
Cystic fibrosis is a genetic disease that affects 30,000 adults and children in the United States and 70,000 people worldwide. It causes life-threatening lung infections and serious digestive complications. More than 10 million Americans are symptomless carriers of a CF gene.
Since the inception of CureFinders® in 2006, about 875 schools nationwide have participated in the program. As part of CureFinders®, students from grades K through 12 collect spare change and classes compete to raise the most money at their school. The program has raised nearly $1.4 million -- each dollar critically important to funding critical research that will save lives.
“On behalf of the Cystic Fibrosis Foundation, I want to thank the students and staff of William Howard Taft High School who worked so hard to raise money and help us fight cystic fibrosis,” said Robert J. Beall, Ph.D., president and CEO of the Foundation. “We are grateful to all the students in California -- and around the country -- who participate in CureFinders®. With their help we hope to make CF stand for 'Cure Found.'”
Each year the top earning school nationwide receives a special visit from the National Honorary Chair.
BJ's Restaurants, Inc., a long-time supporter of the Foundation, is a leading corporate sponsor of CureFinders®. In markets where their restaurants are located, the BJ's Restaurants Foundation will donate $1,000 to each school that raises at least $1,000 for CureFinders® and will donate $1,000 to the Foundation. Additionally, BJ's will provide a pizza party for the winning class at each participating school that raises a minimum of $1,000.
"We congratulate William Howard Taft students and are proud to support CureFinders® and schools across the country that are raising money for vital research for this life-threatening disease," said Robert DeLiema president of BJ's Restaurants Foundation.
The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. The CF Foundation funds more cystic fibrosis research than any other organization, and nearly every CF drug available today was made possible because of CF Foundation support. Based in Bethesda, Md., the CF Foundation also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The Cystic Fibrosis Foundation is a donor-supported nonprofit organization.
Laurie Fink, national director of media relations: 301-841-2602; email@example.com
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