Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Published on October 1, 2015
(Bethesda, Md.) -- The Cystic Fibrosis Foundation announced the appointment of Preston W. Campbell III, M.D., as president and chief executive officer, effective today. Dr. Campbell succeeds Robert J. Beall, Ph.D., who served as president and CEO of the Foundation for 21 years. Dr. Campbell previously served as the Foundation's executive vice president for medical affairs, a position he held since 1998.
Dr. Campbell brings a deep understanding of the Foundation's work to his new role, drawn from his 17 years with the organization. Most recently, he oversaw the Foundation's research, drug discovery and development program, and directed clinical research, the Foundation's network of CF care centers, clinical training programs and the national patient registry database. He has more than 25 years' experience providing direct clinical care to people with CF, most recently at Johns Hopkins CF Care Center and at Vanderbilt's CF Care Center.
“This is an exciting time for the Foundation as we enter a new era of research, engagement and support on behalf of the CF community,” said Dr. Campbell. “I am committed to advancing the mission that has guided the Foundation from its beginnings 60 years ago: to help people with CF live healthier, longer lives, while we search for a cure. As always, the needs of people with CF will guide all that we do.”
Under Dr. Campbell's leadership, the Foundation will continue to work to find new CF therapies and improve existing ones to help people with CF manage the symptoms of the disease. The Foundation is focused on pursuing bold new strategies and technologies to attack the disease at its genetic level, which could one day lead to a cure. It also will connect people with CF with comprehensive programs and services that can help them afford their medications and treatments, as well as fully benefit from their health insurance coverage.
“We are thrilled to have Dr. Campbell as our new president and CEO. He is a CF trailblazer in his own right and has the vision to propel the organization forward during a time of tremendous opportunity and discovery,” said Catherine C. McLoud, chair of the CF Foundation Board of Trustees. “At the same time, we express our enormous gratitude to Dr. Beall for his visionary leadership and lasting contributions, which will continue to impact the lives of people living with CF for years to come.”
During his 35 years with the Cystic Fibrosis Foundation -- 21 years as its president and CEO -- Dr. Beall had a profound impact on the lives of people with CF. When he joined the Foundation, the median predicted age of survival for a person with the disease was 18 years of age - today it is more than 40 years. For the first time ever, more than 50 percent of people with CF are over 18 years of age. CF is no longer a pediatric disease.
Dr. Beall pioneered the Foundation's successful venture philanthropy model, which has been a game changer in CF research and drug development. In 1997, he established the Foundation's Therapeutics Development Program, a unique coalition that has advanced CF drug development through a centralized network of clinical trials and alliances with biotech companies. The program has been responsible for a continuum of breakthrough treatments, including Kalydeco™ and the recently approved Orkambi™, both of which attack the underlying cause of the disease.
“I cannot imagine a more fitting successor than my trusted colleague, Preston. The future of the CF Foundation could not be in more capable hands,” said Dr. Beall. “I want to thank my colleagues, partners and the families in the CF community for giving me the opportunity to work alongside them for 35 years. It has been one of the great privileges of my life.”
The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. The Foundation funds more cystic fibrosis research than any other organization, and nearly every CF drug available today was made possible because of Foundation support. Based in Bethesda, Md., the Foundation also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The Cystic Fibrosis Foundation is a donor-supported nonprofit organization. For more information, go to www.cff.org.
Laurie Fink: 301-841-2602; firstname.lastname@example.org
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