Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Preston W. Campbell, III, President and CEO to retire; Michael P. Boyle, MD, appointed as successor effective January 2020.
Published on May 21, 2019
BETHESDA, Md., May 21, 2019 -- Today the Cystic Fibrosis Foundation announced that President and CEO Preston W. Campbell, MD, plans to retire at the end of 2019. The Foundation's Board of Trustees has selected Michael P. Boyle, MD, currently senior vice president, therapeutics development at the CF Foundation, and former director of the Johns Hopkins Adult Cystic Fibrosis Program, to succeed Dr. Campbell as President and CEO. The two will work closely together during the transition period preceding Dr. Boyle's appointment on Jan. 1, 2020.
Dr. Campbell has dedicated his career to expanding opportunities for people with CF to live longer and healthier lives and fostering hope for all who are touched by the disease. He has served in a leadership position at the CF Foundation for more than 20 years, including President and CEO since 2015. Over the course of his career, the average life expectancy for a person with CF has increased by more than 15 years, the number of adults has surpassed the number of children with the disease, and the CF Foundation has enabled the research and development of multiple therapies to improve the lives of people with CF.
“Preston's tireless commitment to people with CF has been essential to the amazing progress we have achieved in the treatment of this disease,” said Catherine C. McLoud, chair of the CF Foundation Board of Trustees. “He has played an instrumental role in advancing research and care, leading with heart while attracting world-class talent to the Foundation and the field of CF, and investing in programs to support and engage all people with the disease. As we look to the future, we are confident Mike will continue to accelerate that progress, furthering transformational science, care, and programs to meet the needs of people with CF and their families.”
“It has been an honor to lead the CF Foundation and to stand alongside people with CF and their families in the relentless pursuit of our mission, and I believe that now is the right time for a leadership change,” said Preston W. Campbell, MD. “Today, we are on the cusp of advances in treatment that are the result of decades of hard work, collaboration, and commitment by the CF community. The best is yet to come in CF, and there is no one better prepared to lead the CF Foundation in achieving our ultimate goal of a cure than Mike Boyle.”
In his current role at the CF Foundation, Dr. Boyle oversees the clinical development programs of new treatments, as well as the Foundation's Therapeutic Development Network of 92 academic research centers. Prior to joining the Foundation, Dr. Boyle served as founding director of the Johns Hopkins Adult Cystic Fibrosis Program from 1999 to 2015. He is internationally recognized for his clinical research supporting the development of CFTR modulators and his impact on improving care for adults with CF.
“Since its inception, the CF Foundation has been a powerful engine of progress in CF, shaping and powering advances in medical innovation and care that are helping people with CF to live longer, fuller lives than ever before,” said Michael P. Boyle, MD. “Still there is much to be done in our work to support best health for each and every person with CF and illuminate the path to a cure. I am honored by this opportunity to serve the CF community and partner with people with CF, their families, and our outstanding team at the CF Foundation to chart our course for the future.”
The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. The Foundation funds more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support. Based in Bethesda, Md., the Foundation also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The CF Foundation is a donor-supported nonprofit organization. For more information, visit cff.org.
Jess Rowlands, Senior Director of Communications and Media
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