What You Need To Know

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Ensuring Access to Care

In a complex and rapidly changing health care system, we promote policies that help ensure people with cystic fibrosis have access to high-quality, specialized care so they can live longer, healthier lives.

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  1. Article

    Preserving Access for People with CF: The Importance of Cost and Affordability

    Recent therapeutic advances have transformed cystic fibrosis -- adding decades of life and new hope for people living with this disease. To protect this progress, it’s critical that people with CF can access high-quality, specialized treatments and care, regardless of income, insurance, or geography.

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  2. Article

    Protecting Access to Medicaid for Adults With CF

    Medicaid plays an important role in helping one-third of adults with cystic fibrosis in the U.S. afford the specialized care and treatments they need to stay healthy.

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  3. Blog Post

    The Senate Heard Our Voice: The Role of Advocacy in CF

    With several successes for the cystic fibrosis community over the past several months, advocacy is as important as ever to preserving our progress and working toward a cure.

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  1. Blog Post

    Father Worries That Proposed Health Care Reforms Could Affect Daughters With CF

    As a parent of two young adults with cystic fibrosis, Peter knows the financial challenges and obstacles people with the disease face when trying to access quality, affordable care.

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  2. Blog Post

    9-Year-Old With CF Needs Health Care Protections, Says Mother

    A mother worries that her son may lose access to crucial cystic fibrosis medication if proposed health care reforms are carried out.

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  3. Blog Post

    Social Worker Sees Health Reform's Impact in CF Work

    According to social worker Kim Reno, removing critical health care protections in current law would be devastating for people with cystic fibrosis and their families.

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With more than 70 chapters and offices across the country, there are plenty of ways to get involved.

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