What You Need To Know

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Advocacy Achievements

We're working diligently with state and federal government officials to shape public policy that will help all people with CF live long, fulfilling lives. Highlighted below are some examples of our advocacy work.

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  1. Article

    Policy Principles

    Our work to help ensure that people with cystic fibrosis have access to high-quality, specialized care is guided by five core principles.

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  2. Article

    Statements, Letters, and Regulatory Comments

    By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments submitted from September 2018-to date.

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  3. Article

    Congressional Cystic Fibrosis Caucus

    The Congressional Cystic Fibrosis Caucus unites bipartisan members from both chambers to raise awareness for CF; support CF research, drug discovery, and development; encourage collaboration between the public sector and private organizations; and support access to quality, affordable care for people living with CF.

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    Advocacy News

    Read the latest on the Cystic Fibrosis Foundation’s fight for policies that work toward a cure for CF and help ensure everyone with the disease can get adequate, affordable care.

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  2. Blog Post

    The Senate Heard Our Voice: The Role of Advocacy in CF

    With several successes for the cystic fibrosis community over the past several months, advocacy is as important as ever to preserving our progress and working toward a cure.

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  3. Blog Post

    U.S. Senate Cystic Fibrosis Caucus Adds Momentum to the Fight

    Last month, Senator Chuck Grassley (R-Iowa) and I partnered to create the Cystic Fibrosis Caucus in the U.S. Senate. We are working toward a day when CF stands for “Cured Forever.”

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    Watch: 10 Years of Volunteer Accomplishments

    Thanks to the amazing efforts of advocates within the CF community, we have helped pass three crucial pieces of legislation into law in four years!

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  5. Blog Post

    Our Day on the Hill

    More than 60 teens from across the country traveled to Washington, D.C., to advocate on behalf of their siblings, friends and relatives with CF as part of Teen Advocacy Day.

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Find An Event

With more than 70 chapters and offices across the country, there are plenty of ways to get involved.

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