What You Need To Know

Blog Post

COVID-19 Triage Plans and Cystic Fibrosis

As states and health systems prepare for potential surges in COVID-19 cases and increased demand for intensive care, many are creating policies to decide how they will prioritize services and equipment. The Cystic Fibrosis Foundation’s position is clear: Any guideline that unfairly disadvantages people with CF due to outdated information and perceptions is unacceptable.

Learn more

  1. Article

    Federal Legislation Addressing COVID-19

    The U.S. House of Representatives passed its next relief package to provide additional protections for Americans during the COVID-19 pandemic. The Cystic Fibrosis Foundation applauds several provisions included in this bill and urges the Senate to pass these provisions swiftly to ensure the CF community can take full advantage as soon as possible.

    Learn more

  2. Article

    Ensuring Access to Care

    In a complex and rapidly changing health care system, we promote policies that help ensure people with cystic fibrosis have access to high-quality, specialized care so they can live longer, healthier lives.

    Learn more

  3. Article

    Advocating for Robust Funding for CF Research and Drug Development

    Robust funding for the National Institutes of Health helps ensure innovation in basic research and a full pipeline of cystic fibrosis therapies. A well-resourced U.S. Food and Drug Administration helps advance these therapies, making sure that they are safe and effective.

    Learn more

  1. Article

    Preserving Access for People with CF: The Importance of Cost and Affordability

    Recent therapeutic advances have transformed cystic fibrosis -- adding decades of life and new hope for people living with this disease. To protect this progress, it’s critical that people with CF can access high-quality, specialized treatments and care, regardless of income, insurance, or geography.

    Learn more

  2. Article

    Statements, Letters, and Regulatory Comments

    By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments submitted from June 2018-to date.

    Learn more

Find An Event

With more than 70 chapters and offices across the country, there are plenty of ways to get involved.

Find An Event