What You Need To Know

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Preserving Access for People with CF: The Importance of Cost and Affordability

Recent therapeutic advances have transformed cystic fibrosis -- adding decades of life and new hope for people living with this disease. To protect this progress, it’s critical that people with CF can access high-quality, specialized treatments and care, regardless of income, insurance, or geography.

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  1. Article

    ICER and CFTR Modulators

    The Institute for Clinical and Economic Review (ICER) conducted an assessment of the clinical effectiveness and value of CFTR modulators including elexacaftor/tezacaftor/ivacaftor (Trikafta®), tezacaftor/ivacaftor (Symdeko®), lumacaftor/ivacaftor (Orkambi®), and ivacaftor (Kalydeco®). ICER last reviewed CFTR modulators in May 2018.

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  2. Article

    Protecting Access to Medicaid for Adults With CF

    Medicaid plays an important role in helping one-third of adults with cystic fibrosis in the U.S. afford the specialized care and treatments they need to stay healthy.

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  3. Resource

    Advocacy News

    Read the latest on the Cystic Fibrosis Foundation’s fight for policies that work toward a cure for CF and help ensure everyone with the disease can get adequate, affordable care.

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  1. Resource

    Take Action Now

    Learn about current advocacy campaigns sponsored by the CF Foundation in your area and how you can engage in these campaigns to make an impact.

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