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  1. Foundation Joins Chronic Disease Organizations to Educate Policymakers on Needs of People with CF

    December 15, 2016

    The Cystic Fibrosis Foundation joined 72 chronic and rare disease organizations to send a letter to President-elect Trump and Congressional leadership.

  2. Social Security Administration Updates Eligibility Requirements for Disability

    June 9, 2016

    The CF Foundation applauds the Social Security Administration’s updated eligibility requirements for disability benefits for people with respiratory diseases, including people with CF.

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  3. CF Foundation Celebrates Formation of Senate Cystic Fibrosis Caucus

    April 19, 2016

    Senators Edward Markey (D-Mass.) and Charles Grassley (R-Iowa) introduce newly-formed Senate Cystic Fibrosis Caucus today.

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  4. CF Foundation Advocates on Capitol Hill and Participates in White House Precision Medicine Initiative Summit

    March 17, 2016

    The Cystic Fibrosis Foundation’s tenth annual March on the Hill saw more than 80 volunteer advocates from 34 states convene in Washington, D.C. to speak with their members of Congress about cystic fibrosis and ways that elected officials can support the CF community and our search for a cure.

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  5. CF Foundation Honors Congressional Members with Legislative Champion Awards

    March 3, 2016

    On Feb. 24 and 25, the Cystic Fibrosis Foundation presented three Legislative Champion Awards to Senator Ron Wyden (D-Ore.), Senator Orrin Hatch (R-Utah) and Congressman Lloyd Doggett (D-Texas) for their ardent support of the CF community and their sponsorship of S. 139/H.R. 209, the Ensuring Access to Clinical Trials Act.

  6. CF Foundation Celebrates 10 Years of March on the Hill

    February 24, 2016

    Feb. 25 will mark the tenth anniversary of the Cystic Fibrosis Foundation’s signature advocacy event, March on the Hill. Nearly 75 advocates will come together in Washington, D.C. to meet with their elected officials on behalf of their loved ones, who are living with cystic fibrosis.

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