Advocacy News

Filter News By

Clear Filters

  1. Tax Reform Bill Expected to Be Signed Into Law

    December 21, 2017

    The package of tax reforms expected to be signed into law includes several provisions that will impact some people with cystic fibrosis.

    Topics:

  2. Cystic Fibrosis Foundation Awards Sen. Susan Collins the Breath of Life Legislator Award

    November 6, 2017

    The Cystic Fibrosis Foundation awarded U.S. Sen. Susan Collins (R-Maine) the Breath of Life Legislator Award on Nov. 3 for her leadership in ensuring that people with cystic fibrosis have access to the adequate, affordable care they need to live full and healthy lives.

  3. CF Advocates Convene on Capitol Hill for Teen Advocacy Day to Fight for Adequate, Affordable Care

    June 23, 2017

    As part of the Cystic Fibrosis Foundation's ninth annual Teen Advocacy Day, 162 advocates from 38 states met with elected officials in Washington, D.C., to tell their stories and make sure the cystic fibrosis community is heard in ongoing health care reform discussions.

  4. House of Representatives Passes Health Care Reform Legislation

    May 4, 2017

    The U.S. House of Representatives has passed the American Health Care Act (AHCA), legislation that fails to adequately protect people living with cystic fibrosis.

  5. Cystic Fibrosis Foundation Participates in HHS Roundtable on Drug Pricing

    May 2, 2017

    Yesterday, the Cystic Fibrosis Foundation met with HHS Secretary Tom Price and seven other patient advocacy groups to discuss drug pricing and the needs of the CF community. President Trump has identified drug pricing as a top priority, and this meeting was the start of a listening tour by the Secretary.

    Topics:

  6. Cystic Fibrosis Foundation Joins 86 Organizations to Call on Congress to Protect Medicaid

    March 20, 2017

    On March 20, the Cystic Fibrosis Foundation and 86 other organizations called on Congress to protect Medicaid, a critical source of coverage for people in the cystic fibrosis community.
More Posts

Follow Us On