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  1. Rep. Mark Amodei Announced as New Co-Chair of Congressional CF Caucus

    July 12, 2019

    U.S. Rep. Mark Amodei of Nevada will join fellow Rep. Jim McGovern and Sens. Chuck Grassley and Ed Markey in co-chairing the Congressional Cystic Fibrosis Caucus, championing awareness of the rare disease and the Cystic Fibrosis Foundation’s search for a cure.

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  2. Nearly 200 Volunteers Advocate for Loved Ones During 11th Annual Teen Advocacy Day

    July 2, 2019

    Nearly 200 people from across the country -- including teens from 38 states -- came to Washington, D.C., on June 27 to advocate for the needs of their loved ones living with cystic fibrosis during the Cystic Fibrosis Foundation’s 11th Annual Teen Advocacy Day.

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  3. 150 Advocates Rally Behind Pre-Existing Condition Protections During March on the Hill

    March 12, 2019

    One hundred fifty advocates, backed by more than 5,000 connections from an additional 1,600 cystic fibrosis advocates across the country rallied behind protections for people with pre-existing conditions, like CF, during the Cystic Fibrosis Foundation’s 13th annual March on the Hill.

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  4. CF Advocate Serves as Witness at Congressional Hearing on Pre-Existing Conditions

    February 6, 2019

    Chad Riedy, an adult with cystic fibrosis, served as a witness on Wednesday before the House of Representatives' Education & Labor Committee at a hearing on the threats faced by workers with pre-existing conditions.

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  5. CF Foundation Responds to Court Decision to Overturn the ACA

    December 17, 2018

    On Friday, a federal judge issued a decision in Texas v. United States, finding the Affordable Care Act to be unconstitutional. This decision could ultimately leave people with pre-existing conditions, like cystic fibrosis, without patient protections while also jeopardizing access to adequate, affordable health care coverage.

  6. CF Foundation Signs on to Amicus Brief in Legal Challenge to Short-Term Health Insurance Rule

    October 8, 2018

    The Cystic Fibrosis Foundation has joined 11 other patient groups in filing an amicus brief to challenge the short-term, limited-duration health insurance rule, which threatens access to adequate, affordable coverage for people with cystic fibrosis.
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