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  1. Nearly 200 Teens Gather Virtually for the Foundation’s 12th Annual Teen Advocacy Day

    June 26, 2020

    Nearly 200 teens from across the country -- nearly half living with cystic fibrosis -- participated in the Foundation’s Virtual Teen Advocacy Day to advocate for the CF community.

  2. Cystic Fibrosis Foundation’s Statement on ICER’s Revised Evidence Report on Treatments for Cystic Fibrosis

    April 28, 2020

    Cost effectiveness analysis must be used carefully and as part of a comprehensive evaluation of the value a treatment, such as highly effective modulators, provide to people living with cystic fibrosis.

  3. The Cystic Fibrosis Foundation Urges Congress to Expand Paid Leave Policies

    April 9, 2020

    More than 160 organizations join the Cystic Fibrosis Foundation in asking Congress to expand paid family and medical leave for people with chronic conditions, such as cystic fibrosis.

  4. More than 200 Advocates Urge Congress for More Antibiotics During March on the Hill

    March 2, 2020

    More than 200 advocates gathered on Capitol Hill during the Cystic Fibrosis Foundation's 14th Annual March on the Hill, championing antibiotic research and development and other policy needs on behalf of people with CF.

  5. Circuit Court Rules on ACA in Texas v. United States

    December 19, 2019

    On Dec. 18, the Fifth Circuit Court of the United States issued a decision in Texas v. United States, ruling the individual mandate unconstitutional but sending the case back down to the district court for further review about the fate of the entire Affordable Care Act.

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  6. Rep. Mark Amodei Announced as New Co-Chair of Congressional CF Caucus

    July 12, 2019

    U.S. Rep. Mark Amodei of Nevada will join fellow Rep. Jim McGovern and Sens. Chuck Grassley and Ed Markey in co-chairing the Congressional Cystic Fibrosis Caucus, championing awareness of the rare disease and the Cystic Fibrosis Foundation’s search for a cure.

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