Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Our goal is to educate policy makers about the needs of people with cystic fibrosis so that they make smart decisions about CF-related research, treatment, and access to care.
We recognize the value of tapping into the expertise that only people with CF and their families have. We invite you to share insights to help improve and develop programs and services that support the daily lives of people with CF.
Our mission is to find a cure for cystic fibrosis and improve the quality of life for those living with the disease. We can't do it alone. Help us add tomorrows by giving today.
In addition to working for a cure, the CF Foundation supports programs and policies to improve the lives of people with CF. Help us by raising awareness of CF, participating in a fundraising event, or volunteering with your local chapter.
Last updated on April 14, 2014
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22. Accurate Information
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CFF's policy regarding copyright infringement and CFF's designated agent for receipt of copyright infringement claims pursuant to the Digital Millennium Copyright Act is incorporated herein and can be found at Copyright Policy.
Should you respond to the Site by providing feedback, such as questions, requests, opinions, comments, suggestions, ideas, or the like, such information shall be deemed to be the property of CFF. CFF shall have no obligation of any kind to the User with respect to such information and shall be free to reproduce, use, disclose and distribute the information to others without limitation and without license. CFF shall be free to use any ideas, concepts, know-how or techniques contained in such information for any purpose whatsoever.Policy Regarding Intellectual Property On This Web site
The Cystic Fibrosis Foundation (CFF) respects the Intellectual Property rights of others and requires those that visit our website, use our system for Internet access and e-mail, or obtain other educational or fund-raising information from us to do the same. The CFF may, in appropriate circumstances and at its sole discretion, remove or disable access to material on its web site and its e-mail systems that infringes upon its Intellectual Property rights or the rights of others. The CFF also may, at its discretion, remove or disable links or references to an on-line location that contains infringing material or infringing activity.
All information and content, including any software available through the Site, (“Content”) is protected by copyright and/or trademark and is owned as Intellectual Property of the owner. All rights are reserved. Users are prohibited from modifying, copying, distributing, transmitting, displaying, publishing, selling, licensing, creating derivative works, or using any Content available on or through the Site for commercial or public purposes.Policy Regarding Copyright Materials of Others on this Web site
The CFF respects the copyrights of others and does not knowingly infringe upon these rights. However, if you believe that your work has been used on our web site in any manner that constitutes copyright infringement, please notify CFF's Intellectual Property agent by written notice. The notice should include the following information:
Policy Regarding Use of CFF Trademarks
The trademarks, logos, and service marks (“Marks”) displayed on this web site, and related web sites belonging to the Cystic Fibrosis Foundation, including the CFF logo, 65 Roses® and Great Strides®, among others, are registered trademarks of the Cystic Fibrosis Foundation, are the property of the Cystic Fibrosis Foundation, and are protected by U.S. and international trademark laws. Their uses are restricted to those programs and events sponsored by the CFF, and CFF trademarks may not be used for personal financial gain.
Use of the Marks is prohibited without the express written consent of the Cystic Fibrosis Foundation except as permitted by applicable laws. Nothing contained on the Site should be construed as granting, by implication, estoppel, or otherwise, any license or right to use the Marks without the express written consent of the Cystic Fibrosis Foundation.
At times, the CFF, in consultation with legal counsel, may grant limited-use licensing agreements to those individuals or groups who wish to help further the mission of the CFF. Solely at the discretion of the CFF, limited permission for use of CFF's Marks may be granted for those projects which provide a substantial benefit to the CFF or the cystic fibrosis community in general.
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Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
Attn: Copyright Officer
By Phone: 301-951-4422
By E-mail: firstname.lastname@example.org
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