Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Cystic Fibrosis Foundation Compass is a team of knowledgeable and dedicated case managers who can help you with insurance, financial, legal, and other issues related to life with cystic fibrosis. With more than 110 years of combined experience in helping people navigate health issues, Compass case managers are ready to help you with your CF-related needs.
Cystic Fibrosis Foundation Compass is a multi-faceted team of case managers and programmatic specialists that provide people with cystic fibrosis, their families, and their care teams with the tools and resources they need to navigate life’s most
Compass case managers are caring and knowledgeable patient advocates specialized in navigating CF-related issues. Eligible case managers have also received AIRS (Alliance of Information and Referral Systems) certification,
which helps them properly vet external organizations and services before suggesting them as a resource to the CF community.
Karen has worked for the CF Foundation since spring 2015 and is based out of the Rocky Mountain Chapter. She was instantly inspired by the resolve of the CF community to find a cure and feels privileged to share that purpose. Karen received
her bachelor’s degree in sociology and law, politics, and society from Drake University.
Heather has 10 years’ experience in patient advocacy and has been with the Foundation since 2013. She is a Certified Community Resource Specialist and is currently pursuing her master’s degree in social work from the University of Maryland,
with the goal to obtain valuable knowledge to better serve the CF community.
Erin joined the Foundation in 2016 and is based out of the Rocky Mountain Chapter. She has a bachelor’s degree in sociology and Spanish literature from the University of Colorado. She is also a Certified Community Resource Specialist.
Sharkara has been in the health care field for more than 10 years. She received her bachelor’s degree in health promotion and education from University of Georgia and is a Certified Community Resource Specialist.
Jessica joined the Compass team in July 2018 and has been with the Foundation since September 2016 when she worked at the Dallas Chapter on events like Great Strides and Cycle for Life. She has a passion for helping the CF community and is personally connected through
her younger brother who has CF. Jessica is working on her
bachelor’s degree in psychology from Richland College.
Caitlin was first introduced to the cystic fibrosis community while working as a respiratory therapist assistant at a hospital in Michigan. She started with the CF Foundation in November of 2016 at the Michigan Chapter and worked on events
like Great Strides and Cycle for Life. She joined the Compass team in 2019. Caitlin received her bachelor’s degree in community development from Central Michigan University.
Blake has worked in the health care field since 2012. Before joining Compass, his focus was on mental health and that is where he began developing his toolbox of skills for helping others. He received his associate degree in human
services from Troy University.
Before coming to the Foundation, Kelly worked in human resources for GW Hospital, where she developed a passion for helping people in the health care field. She received her bachelor’s degree in music from Ithaca College.
Victor has several years of experience working in the health care industry. He cares passionately about the CF community and is dedicated to the Foundation’s mission. He received his bachelor’s degree in psychology from Carleton University
and his master’s degree in business administration from Liberty University. Victor is a Certified Community Resource Specialist.
Yamini has supported the CF community since 2009. Previously, she worked with the elderly in an assisted living facility. Yamini received her master’s degree in health services administration from George Washington University. Yamini is
a Certified Community Resource Specialist.
Prior to joining the Foundation, Becca worked for a rare-disease nonprofit, navigating patients to resources and managing patient education channels. She is a Certified Health Education Specialist and a Certified Community Resource Specialist.
Becca received her bachelor’s degree in public health education and promotion from James Madison University.
Katy has a background in psychological and behavioral health, and she works out of the Rocky Mountain Chapter. Katy received her bachelor’s degree in human services from the University of Northern Colorado. Katy is a Certified Community
Wanda has worked in the health care field for more than 40 years, as a nurse and as a pharmacy specialist. She has been with the Foundation since 2002 and with Compass since 2016. Wanda is a Certified Community Resource Specialist.
Martha has been with the Foundation since 2016. She enjoys what she does every day to help the CF community and working with an amazing group of people. Martha received her bachelor’s degree in Spanish language and literature from Manhattanville
College. Martha is a Certified Community Resource Specialist.
Follow Us On
Insurance, financial, legal, and other issues. A dedicated, knowledgeable CF Foundation Compass case manager is ready to work with you one-on-one.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
Sign up for our emails