Living with cystic fibrosis comes with unique challenges faced by people with the disease, their families, and their care teams. Cystic Fibrosis Foundation Compass provides people in the CF community a resource to navigate complex issues, becoming a trusted partner in their care.

Navigating Insurance

With the changing health insurance landscape, understanding or choosing a new insurance plan can be complex and challenging. Compass case managers can help you:

  1. Understand insurance basics, such as how it works and what common insurance terms mean
  2. Consider insurance plans to find one that meets your needs, including comparing private insurance plans or navigating the individual insurance marketplace
  3. Understand Medicaid and Medicare, including whether you are eligible, the pros and cons of different programs, and how to cover costs beyond your medical expenses
  4. Understand your insurance plan, including what is and isn't covered, how your benefits apply to your medical care and prescriptions, which drugs are covered, and what restrictions your plan might have
  5. Troubleshoot insurance issues, such as helping you work with your insurance company to address billing issues and denied claims for treatment
  6. Find health care providers and pharmacies in your area covered by your insurance plan
  7. Receive guidance on appeals if your insurance company denies claims

Financial Assistance

Compass can help you and your family identify ways to offset CF-related costs through different financial assistance programs and organizations. Compass case managers can help you:

  • Identify and connect to programs that may pay for:
    • Drugs
    • Vitamins
    • Supplements
    • Some medical devices
    • Copays
    • Deductibles
    • Out-of-pocket expenses
  • Get the most out of financial assistance services, including combining drug company programs and special CF care funds
  • Apply for benefits, such as Social Security disability benefits

Connecting You With Legal Resources

Do you have questions about your rights as a person living with CF? Compass case managers can help connect you with legal information and resources, including the CF Legal Information Hotline®, for questions related to:

  • Health insurance rights
  • Employment issues
  • Education issues
  • Government and disability benefits 

Compass may also be able to connect you with resources for dealing with other legal issues.

Other Issues Related to Life With CF

Any person with cystic fibrosis knows that living with the disease can be complicated and has the potential to impact many aspects of daily life. Compass can help you navigate some of those challenges so you can focus on what is important to you. Case managers can help you:

  • Navigate through life transitions, such as going to college, getting married, or buying a new home
  • Plan for transplants, such as looking for temporary lodging near a transplant center or looking for transplant grants 
  • Find resources for living and food expenses, such as utility assistance or food supply programs, temporary housing, or home repair
  • Identify transportation to and from your care center
  • Plan for hospice, palliative care, and funeral expenses

Connect With Compass

A Compass case manager can help you with your unique needs. To find out how Compass can help you, call us at 844-COMPASS (844-266-7277), Monday through Friday, 9 a.m. until 7 p.m. ET, or email us at

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