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Raising an Adult (in Training)

By Jamie Roney September 30, 2020

I want my daughter to be prepared for the world when she grows up, and that includes taking charge of her CF. She is only 4 years old, but it’s never too early to get her ready to take on her CF care by herself.

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  1. The Future of Personalized Medicine

    By Katherine Tuggle, Ph.D. October 8, 2015

    There’s a lot of buzz around personalized medicine, but what does it really mean? In the first plenary at NACFC, John P. Clancy, M.D., outlined the history of personalized medicine, where we are now and what the future holds. Read on for a quick recap.

  2. Grateful Space

    By Rebecca Schroeder October 2, 2015

    As the mother of a child with CF and volunteer for the CF Foundation, I know first-hand the extraordinary things that Dr. Bob Beall has done for our community, and I am grateful for the legacy of hope that he leaves behind.

  3. Orkambi: A Life Sentence

    By Amy Braid September 22, 2015

    I’ve lived my whole life like it has an early expiration date. Recently, a drug was FDA-approved that could change that. I’m grateful, but I’m also scared…

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  4. Video: What’s Next for Clinical Research?

    By Christina Roman July 22, 2015

    The CF Foundation is focused on bringing forward new therapies to help people with CF enjoy the best health and quality of life. Following the approval of the new CF drug Orkambi, we sat down with Dr. Mike Boyle, our new vice president of therapeutics development, to learn more about the future of clinical research and what’s most exciting.

  5. CF Community Reacts to Approval of Orkambi

    By Danielle Cipriani July 22, 2015

    Earlier this month, we learned that the new CF drug Orkambi was approved by the FDA -- an exciting, memorable and emotional day for everyone in the CF community. Here are some reactions from those this impacts the most:  people with CF and their loved ones.

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