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Just Because I Can’t Work Doesn’t Mean I Am Lazy

By Jenny Livingston August 08, 2019

In an ableist society, sometimes you just have to ignore comments that make you feel worthless for not working. If I had the chance, here is what I would tell people who judge those with an invisible illness.

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  1. 6 Tips for Involving Your Pediatrician in Your Kids’ CF Care

    By Erin Taylor July 26, 2018

    As the parent of children with cystic fibrosis, it can be challenging to know where to turn when they experience unfamiliar health issues. Here are six things I’ve learned from working with our CF care team and our pediatrician to keep my kids healthy.

  2. 8 Ways to Avoid Germs on Your Next Family Vacation

    By Erin Taylor June 12, 2018

    Now that summer is upon us, you may be planning your next vacation. Although cystic fibrosis can make things a bit more complex, these eight tips can help you or your kids avoid as many germs as possible while traveling.

  3. 10 Things That Are Stressing Me Out More Than My Son’s CF

    By Erin Taylor November 4, 2016

    In the two and a half years since our son’s cystic fibrosis diagnosis, we’ve learned how to build his care into our daily routine and manage his disease to the point that it’s almost become … dare I say … normal. Here is a list of the top 10 things that are stressing me out more than my son’s CF right now.

  4. Why I Celebrate My Son’s CF Milestones

    By Erin Taylor June 6, 2016

    You may be surprised to learn that this year, my husband and I celebrated the two-year anniversary of our son’s CF diagnosis. How is it possible to celebrate a day that brings me so much pain to remember, you might ask? Because it’s a milestone.

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