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The Wait For My Son’s Trikafta

By Misty Roussa March 26, 2020

I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don’t want him to have any setbacks.

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  1. Avoiding CF Information Overload

    By Erin Taylor September 18, 2019

    Don’t let the internet fire hose of CF information overwhelm you. As a mother to two children with cystic fibrosis, I can give you some tips on avoiding common pitfalls.

  2. 6 Tips for Involving Your Pediatrician in Your Kids’ CF Care

    By Erin Taylor July 26, 2018

    As the parent of children with cystic fibrosis, it can be challenging to know where to turn when they experience unfamiliar health issues. Here are six things I’ve learned from working with our CF care team and our pediatrician to keep my kids healthy.

  3. 8 Ways to Avoid Germs on Your Next Family Vacation

    By Erin Taylor June 12, 2018

    Now that summer is upon us, you may be planning your next vacation. Although cystic fibrosis can make things a bit more complex, these eight tips can help you or your kids avoid as many germs as possible while traveling.

  4. 10 Things That Are Stressing Me Out More Than My Son’s CF

    By Erin Taylor November 4, 2016

    In the two and a half years since our son’s cystic fibrosis diagnosis, we’ve learned how to build his care into our daily routine and manage his disease to the point that it’s almost become … dare I say … normal. Here is a list of the top 10 things that are stressing me out more than my son’s CF right now.

  5. Why I Celebrate My Son’s CF Milestones

    By Erin Taylor June 6, 2016

    You may be surprised to learn that this year, my husband and I celebrated the two-year anniversary of our son’s CF diagnosis. How is it possible to celebrate a day that brings me so much pain to remember, you might ask? Because it’s a milestone.

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