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The Wait For My Son’s Trikafta

By Misty Roussa March 26, 2020

I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don’t want him to have any setbacks.

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  1. This Year, Join March on the Hill Virtually!

    By Mara Cray March 8, 2018

    For people with cystic fibrosis, our story is the most powerful tool we have to stand up for ourselves and fight for our needs. Although I can’t always be there to share my story with legislators in person, I’ll be joining many others from the CF community for our first March on the Hill Online Day of Action to make my voice heard.

  2. My Most Embarrassing Mucus Moment

    By Mara Cray September 19, 2017

    It’s not a crime to projectile cough, but sometimes it feels like it is.

  3. Dealing With Awkward CF Situations

    By Mara Cray August 11, 2017

    Although having cystic fibrosis can lead to awkward situations, dealing with it with humor and grace has helped me put them in perspective.

  4. Taking on the Beloved British Tradition: the Gap Year

    By Mara Cray March 22, 2016

    Last August, I watched all of my friends head off to school and all of a sudden I was the only one left still living at home. I hadn't even graduated high school, but I was getting to experience the time-honored and popular British tradition of a taking a gap year.

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  5. Mara Goes to Washington

    By Mara Cray December 17, 2015

    Last week I travelled to D.C. to serve on a panel discussing the recent developments in precision medicine. I’ve got to say, it was pretty neat.

  6. Sleepovers vs. Hospital Stays: A Comparison and Survival Guide

    By Mara Cray November 5, 2015

    When I was young, my parents tried to increase the appeal of hospital stays by calling them “sleepovers.” But as I got older, I realized that these two things are, in fact, not the same.

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