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What We’ve Learned From Our Grandchild With CF

By Jamie Schlosser & Marian Schlosser September 10, 2021

Our hearts stopped when we first heard that our grandson, Jase, had cystic fibrosis. We didn’t even know what it was. However, we have learned a lot along the way and have gotten used to rolling with the ups and downs of this disease.

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  1. Community Voice Brings Your Voice Into Everything That We Do

    By Christina Roman April 7, 2017

    The CF Adult and Family Advisors (AFA) just got a fresh new look and name: Community Voice. By joining this group, people with cystic fibrosis and their family members have an active say in the Cystic Fibrosis Foundation’s initiatives, driving improvements that benefit everyone impacted by CF.

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  2. Patient Safety Is a Top Priority in Clinical Research

    By Christina Roman August 4, 2016

    The top priority in clinical research is protecting the safety of people who participate. Learn more about the numerous layers of review that help keep participants safe.

  3. WATCH: New Developments in Drugs to Reduce Infection, March 2016

    By Christina Roman March 29, 2016

    Dr. Jennifer Taylor-Cousar shares new developments in drugs that fight infections in the lungs of people with cystic fibrosis.

  4. WATCH: New Developments in Drugs to Restore Airway Surface Liquid, March 2016

    By Christina Roman March 15, 2016

    Dr. John P. Clancy shares new developments in drugs that restore airway surface liquid in the lungs of people with cystic fibrosis, making it easier to clear mucus.

  5. WATCH: New Developments in Drugs to Reduce Inflammation, Feb. 2016

    By Christina Roman February 29, 2016

    Dr. James Chmiel shares new developments in drugs to reduce inflammation in the lungs and help prevent lung damage.

  6. WATCH: New Developments in Restoring CFTR Function, Feb. 2016

    By Christina Roman February 17, 2016

    Drs. Drucy Borowitz and Manu Jain share new developments in drugs that will treat the underlying cause of cystic fibrosis.
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