CF Community Blog

Featured

The Wait For My Son’s Trikafta

By Misty Roussa March 26, 2020

I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don’t want him to have any setbacks.

Filter Posts By

Clear Filters

  1. Significant Progress Has Been Made in Inflammation Research

    By Katherine Tuggle, Ph.D. October 19, 2018

    Finding a way to reduce lung inflammation in cystic fibrosis has challenged researchers, but we have made important advances in our understanding of this CF complication in just the last few years. Several drugs also are in development to fight another complication -- the inability to clear mucus from the lungs.

  2. How Theratyping Will Bring Modulators to More People With CF

    By Katherine Tuggle, Ph.D. November 2, 2017

    This year, theratyping, the process of matching medications with mutations, enabled more people with cystic fibrosis who have rare mutations to benefit from modulators. In the first plenary at the NACFC, we heard more about how theratyping will be used, as well as other future advances coming in CF treatment.

  3. On the Road to a Cure: Pushing for Treatments for Everyone With CF

    By Katherine Tuggle, Ph.D. October 27, 2016

    Researchers are exploring treatments that will keep people with cystic fibrosis as healthy as possible until a cure is found. In the first plenary at the NACFC, two CF scientists explain the progress of current research.

  4. Scientists Explore Potential and Challenges of New Technologies at Savannah Research Conference

    By Katherine Tuggle, Ph.D. July 25, 2016

    For the first time, the Cystic Fibrosis Foundation invited non-CF experts to its annual research conference to meet with CF researchers. The conference -- New Technologies Advancing Toward a One-Time Cure -- in Savannah last month focused on the challenges being faced in gene editing, gene delivery and stem-cell biology and laid the foundation for new collaborations.

  5. The Future of Personalized Medicine

    By Katherine Tuggle, Ph.D. October 8, 2015

    There’s a lot of buzz around personalized medicine, but what does it really mean? In the first plenary at NACFC, John P. Clancy, M.D., outlined the history of personalized medicine, where we are now and what the future holds. Read on for a quick recap.

  6. New Ideas Energize Scientists at CF Research Conference

    By Katherine Tuggle, Ph.D. August 4, 2015

    The Foundation hosted a small conference that brought together CF scientists, clinical researchers and biotechnology and pharmaceutical industry representatives. Learn more and watch a short video of attendees sharing their thoughts about the progress we are making in CF research.

Follow Us On

Blog RSS

Interested in sharing your story on the blog?

Learn More