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Raising an Adult (in Training)

By Jamie Roney September 30, 2020

I want my daughter to be prepared for the world when she grows up, and that includes taking charge of her CF. She is only 4 years old, but it’s never too early to get her ready to take on her CF care by herself.

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  1. Meet Rachel Kinney

    By Carolyn Kilkus January 25, 2016

    Learn how Rachel Kinney fits studying for a computer science major, an active social calendar and daily cystic fibrosis treatments into her life.

  2. Meet Wes Parsel

    By Carolyn Kilkus January 7, 2016

    In our first 2016 “Living Today” video, Wes Parsel, 27, talks about almost everyone’s New Year resolution: exercise. The big difference is that he’s been doing this his whole life, in addition to his daily treatment routine.

  3. Meet Stacy Motenko

    By Carolyn Kilkus October 16, 2015

    Our latest “Living Today” video features Stacy Motenko, 28, who refuses to let CF limit her dreams. Hear Stacy’s story.

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