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Understudied Areas in CF Get Extra Attention at NACFC

By Jacqui Sjoberg January 14, 2021

I could fill a book with all the things I learned at the virtual North American Cystic Fibrosis Conference this year, but I am especially glad that there was a focus on diversity, gender health, and sex-based differences in CF.

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  1. Adapting to an Online Volunteer Leadership Conference

    By Ray Poole March 12, 2020

    Although I was disappointed that the Volunteer Leadership Conference was transformed into a virtual event this year, I know that this was the best decision to keep the cystic fibrosis community safe during the coronavirus outbreak.

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  2. The Path Between Hope and Pessimism

    By Ray Poole July 18, 2018

    When my wife’s health declined and we didn’t know if she’d be able to undergo a lung transplant, I decided to reject blind optimism and pessimism and chose a third path.

  3. Why My Wife and I Choose Laughter When It Comes to CF

    By Ray Poole June 9, 2017

    As the husband of Rebecca, who has cystic fibrosis, I’ve been criticized more than once for joking too much throughout our journey with CF. But if there is one thing my wife has taught me, it’s that amazing courage is not improved by focusing on the imposing strength of the disease; it’s magnified by laughing in its face.

  4. Your Pain Is Not Like Mine

    By Ray Poole March 17, 2017

    During a health crisis, we can focus on our pain so much that we don’t take time to acknowledge the pain of others.

  5. Striving for the Impossible: Caring for My Wife With CF

    By Ray Poole January 6, 2017

    How much are you willing to do for a loved one? The answer is simple: anything and everything, right? We advocate for them, make sacrifices to be with them and worry about them constantly. Last year I did all of this, but -- somehow -- still felt pangs of guilt.

  6. Changing Perspectives: Lessons of a CF Caregiver

    By Ray Poole August 31, 2016

    Time after time, cystic fibrosis has shown me that what I thought was important could change with changing circumstances.

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