CF Community Blog

Featured

Just Because I Can’t Work Doesn’t Mean I Am Lazy

By Jenny Livingston August 08, 2019

In an ableist society, sometimes you just have to ignore comments that make you feel worthless for not working. If I had the chance, here is what I would tell people who judge those with an invisible illness.

Filter Posts By

Clear Filters

  1. The Path Between Hope and Pessimism

    By Ray Poole July 18, 2018

    When my wife’s health declined and we didn’t know if she’d be able to undergo a lung transplant, I decided to reject blind optimism and pessimism and chose a third path.

  2. Why My Wife and I Choose Laughter When It Comes to CF

    By Ray Poole June 9, 2017

    As the husband of Rebecca, who has cystic fibrosis, I’ve been criticized more than once for joking too much throughout our journey with CF. But if there is one thing my wife has taught me, it’s that amazing courage is not improved by focusing on the imposing strength of the disease; it’s magnified by laughing in its face.

  3. Your Pain Is Not Like Mine

    By Ray Poole March 17, 2017

    During a health crisis, we can focus on our pain so much that we don’t take time to acknowledge the pain of others.

  4. Striving for the Impossible: Caring for My Wife With CF

    By Ray Poole January 6, 2017

    How much are you willing to do for a loved one? The answer is simple: anything and everything, right? We advocate for them, make sacrifices to be with them and worry about them constantly. Last year I did all of this, but -- somehow -- still felt pangs of guilt.

  5. Changing Perspectives: Lessons of a CF Caregiver

    By Ray Poole August 31, 2016

    Time after time, cystic fibrosis has shown me that what I thought was important could change with changing circumstances.

Follow Us On

Blog RSS