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Creating a Smooth Transition to Transplant Clinic

By Paul Merritt November 26, 2019

Since starting the transplant journey, I have learned many things, run into many roadblocks, and been left shocked by other issues.

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  1. 5 Tips for Helping Prepare Your Child for a Medical Procedure

    By Rachael Havey February 22, 2019

    Medical procedures -- even simple ones -- can be scary for a child. When your child has cystic fibrosis, managing the fear surrounding these necessary treatments can be daunting, but my husband and I have instituted five rules that seem to help.

  2. Finding My CF Mom Tribe

    By Rachael Havey September 28, 2018

    After my son was diagnosed with cystic fibrosis, I knew that I wanted to connect with other CF families. Fortunately, I’ve been able to find a group of moms who understand what my life is like and help me cope.

  3. How We Explain My Child’s CF

    By Rachael Havey August 27, 2018

    Figuring out your child’s CF diagnosis is complicated on its own, but learning how to communicate everything that goes into caring for your child to those outside of the CF community can be even more overwhelming. Here are my tips and tricks to using your voice to both educate and advocate on behalf of your child.

  4. Deciding to Have a Second Child When Your First Child Has CF

    By Rachael Havey February 7, 2017

    My husband and I had always said that we would either have no kids, or we would have two. But, when our first child was diagnosed with cystic fibrosis, we were suddenly faced with a difficult decision.

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