CF Community Blog

Featured

The Wait For My Son’s Trikafta

By Misty Roussa March 26, 2020

I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don’t want him to have any setbacks.

Filter Posts By

Clear Filters

  1. Having CF Doesn’t Mean You Have to Settle

    By Kassandra Case October 11, 2018

    Looking for the right partner when you are sick comes with so many challenges. Despite CF’s obstacles, being patient and honest can help you find a healthy and loving relationship that is right for both of you.

  2. How I’m Becoming a Service Dog for My Mom With CF

    By Kassandra Case & Rusalka the Corgi August 24, 2017

    In today’s post, Rusalka the Corgi talks about her role as a service dog for her mom with cystic fibrosis.

  3. How I Came to Love My Scars, My Body, and Myself

    By Kassandra Case July 18, 2017

    As a teenager with cystic fibrosis, I always felt that my body was different, and therefore, shameful. But in one day, I had a change of perspective that allowed me to love myself and appreciate how far I’ve come in my journey with CF.

Follow Us On

Blog RSS

Interested in sharing your story on the blog?

Learn More