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The Wait For My Son’s Trikafta

By Misty Roussa March 26, 2020

I am both excited and scared that my son will be old enough to try Trikafta when he turns 12 later this year. In some ways, I can hardly wait to see how he will benefit. But I also know that he might experience side effects, and I don’t want him to have any setbacks.

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  1. Doing Better By Doing Less

    By Bobby Foster May 29, 2019

    I’ve learned to stop feeling guilty about all that I can’t do and to focus on making a larger impact with the things that I can.

  2. CF Is in My Lungs and I'm Trying to Keep It Out of My Head

    By Bobby Foster September 26, 2018

    I’ve learned that what I tell myself about how cystic fibrosis affects me, affects my belief in what I can achieve, and how I feel about myself as a person.

  3. Healing Pain With Love

    By Bobby Foster May 15, 2018

    I respond with love when pain drives people to make fun of my cystic fibrosis.

  4. How My Poem “Monster” Describes My Journey With CF

    By Bobby Foster April 11, 2018

    Although my journey with cystic fibrosis has been difficult, over time, I have learned to embrace it. In my poem “Monster,” I address this head on and describe my own process of coming to terms with my disease.

  5. CF Can’t Tear Us Apart

    By Bobby Foster February 15, 2018

    If you have CF, maybe you couldn’t get out of bed today, or maybe you are traveling the world. No matter your health status, you have learned to be strong in the face of the fear and pain that comes with CF. So, take the strength you have and pass it on to others. Because true healing comes when you show people love.

  6. Why I’ve Become Grateful for My CF

    By Bobby Foster March 31, 2017

    I never imagined that I would see cystic fibrosis as something to be grateful for. But now, in my 23rd year of life, I am thankful that CF has allowed me to open up about my struggles through spoken word poetry and find freedom in shared humanity.

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