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What We’ve Learned From Our Grandchild With CF

By Jamie Schlosser & Marian Schlosser September 10, 2021

Our hearts stopped when we first heard that our grandson, Jase, had cystic fibrosis. We didn’t even know what it was. However, we have learned a lot along the way and have gotten used to rolling with the ups and downs of this disease.

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  1. My Rocky Road to Lung Transplant

    By Elizabeth Dolan January 14, 2020

    My lung transplant journey was long and, at times, full of uncertainty. Now that I have new lungs, I want to live my life to the fullest and honor my donor while I do.

  2. Living in Limbo

    By Elizabeth Dolan December 6, 2018

    When you are waiting to be listed for a lung transplant, it can feel like you’re in limbo. Through the many frustrations and uncertainties, I’ve learned that it’s important to get support -- not only for my physical health, but for my emotional health as well.

  3. Coping With the Uncertainties of My Disease

    By Elizabeth Dolan September 6, 2018

    After my last hospitalization, I faced new challenges and issues related to my cystic fibrosis -- including panic attacks and supplemental oxygen. Although it’s been difficult adjusting to my “new normal,” I am slowly learning how to cope with the uncertainties of my disease.

  4. How I Overcame B. cepacia’s Emotional Hold

    By Elizabeth Dolan November 7, 2017

    Burkholderia cepacia took a toll on me physically, but overcoming the emotional blow was even more difficult.

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