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Raising an Adult (in Training)

By Jamie Roney September 30, 2020

I want my daughter to be prepared for the world when she grows up, and that includes taking charge of her CF. She is only 4 years old, but it’s never too early to get her ready to take on her CF care by herself.

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  1. Don’t Be Afraid to Let New Friends Into Your CF World

    By Amye Phinazee December 5, 2019

    The convenience of growing up and living in a small town is that everyone knows your cystic fibrosis story. But, moving to a new city doesn't mean you have to greet everyone with a monologue about your illness. Wait until CF creates an opening.

  2. Jumping Over My Fear to Join a CF Clinical Trial

    By Amye Phinazee July 9, 2019

    I used to be afraid of the thought of participating in a clinical trial for a cystic fibrosis medication. But when my doctor asked me recently if I was interested, I jumped at the chance. My desire to help myself and the CF community finally outweighed my fears.

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