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What We’ve Learned From Our Grandchild With CF

By Jamie Schlosser & Marian Schlosser September 10, 2021

Our hearts stopped when we first heard that our grandson, Jase, had cystic fibrosis. We didn’t even know what it was. However, we have learned a lot along the way and have gotten used to rolling with the ups and downs of this disease.

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  1. Watch the COVID-19 Vaccines Community Town Hall

    By Melanie Abdelnour January 21, 2021

    Watch a panel of experts discuss COVID-19 vaccines through the lens of cystic fibrosis.

  2. Grateful for the People Who Support Me Along My CF Journey

    By Melanie Abdelnour April 21, 2020

    Living with cystic fibrosis, I owe gratitude to the friends, family, and care team members who love me, support me, and make my life easier. Join me in letting those who support you know how much you appreciate them.

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  3. My Love-Hate Relationship With Social Media

    By Melanie Abdelnour January 8, 2019

    I am thankful for the relationships I have online with other people with cystic fibrosis. But the flip side of using social media is that I open myself up to the possibility of unkind words or feelings of sadness whenever I log in.

  4. NACFC Session Examines the Importance of Partnerships in CF Care

    By Melanie Abdelnour October 20, 2018

    At the third plenary at this year’s North American Cystic Fibrosis Conference, we explored what it means to partner in care and how to do it better.

  5. Why Little Moments Matter When It Comes to CF Care

    By Melanie Abdelnour June 23, 2017

    When it comes to my cystic fibrosis care team, I’ve learned that it’s often the little moments that matter most.

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  6. Redefining Success

    By Melanie Abdelnour October 22, 2015

    The time has come to redefine success and what it should look like in the CF community.

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