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Just Because I Can’t Work Doesn’t Mean I Am Lazy

By Jenny Livingston August 08, 2019

In an ableist society, sometimes you just have to ignore comments that make you feel worthless for not working. If I had the chance, here is what I would tell people who judge those with an invisible illness.

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  1. How One Blood Draw Helped Us Grow as Parents

    By Jaclyn Strube April 22, 2019

    Our parenting style wasn’t something my husband and I figured out before our son was born. But given all the unexpected challenges CF throws at us, that flexibility has helped us grow as parents, able to change course if something doesn’t work.

  2. Food for Thought: Lessons From My Son’s Road to a G-Tube

    By Jaclyn Strube June 21, 2018

    I’ve written about how tough a decision it was to get my son, Major, a gastrostomy tube. I also wrote about the benefits it has provided. Here’s what the process taught me.

  3. How a G-Tube Unlocked My Son’s Potential

    By Jaclyn Strube March 22, 2018

    After deciding to get a gastrostomy tube for our son, my husband and I made sure he was prepared for the procedure. What we weren’t prepared for was the difference it made in his health, energy levels, and personality.

  4. How I Decided on a G-Tube for My Son

    By Jaclyn Strube January 23, 2018

    My husband and I tried everything to encourage weight gain in our young son to no avail; so we chose to get him a gastrostomy tube.

  5. 5 Ways to Keep Your Toddler Busy During Treatments

    By Jaclyn Strube November 10, 2017

    Having trouble finding things to keep your toddler occupied during treatments for cystic fibrosis? Here are five tips that do the trick for my 3-year-old son, Major.

  6. 6 Tips for Keeping Fundraising Fresh

    By Jaclyn Strube July 31, 2017

    It wasn’t until my son was born with cystic fibrosis that I became motivated to raise money for a cause. In the past three years, I have learned quickly how to manage my time and maximize donations.

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