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Sharing My Story on Social Media Without Oversharing My Son’s CF Journey
By
Jaclyn Strube
October 9, 2019
Using social media helps me cope with raising a child with cystic fibrosis, but I have to remember that it’s not just my story I’m sharing. Here’s how I make sure I share the right parts of my son’s CF journey.
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How One Blood Draw Helped Us Grow as Parents
By
Jaclyn Strube
April 22, 2019
Our parenting style wasn’t something my husband and I figured out before our son was born. But given all the unexpected challenges CF throws at us, that flexibility has helped us grow as parents, able to change course if something doesn’t work.
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Food for Thought: Lessons From My Son’s Road to a G-Tube
By
Jaclyn Strube
June 21, 2018
I’ve written about how tough a decision it was to get my son, Major, a gastrostomy tube. I also wrote about the benefits it has provided. Here’s what the process taught me.
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How a G-Tube Unlocked My Son’s Potential
By
Jaclyn Strube
March 22, 2018
After deciding to get a gastrostomy tube for our son, my husband and I made sure he was prepared for the procedure. What we weren’t prepared for was the difference it made in his health, energy levels, and personality.
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How I Decided on a G-Tube for My Son
By
Jaclyn Strube
January 23, 2018
My husband and I tried everything to encourage weight gain in our young son to no avail; so we chose to get him a gastrostomy tube.
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5 Ways to Keep Your Toddler Busy During Treatments
By
Jaclyn Strube
November 10, 2017
Having trouble finding things to keep your toddler occupied during treatments for cystic fibrosis? Here are five tips that do the trick for my 3-year-old son, Major.