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What We’ve Learned From Our Grandchild With CF

By Jamie Schlosser & Marian Schlosser September 10, 2021

Our hearts stopped when we first heard that our grandson, Jase, had cystic fibrosis. We didn’t even know what it was. However, we have learned a lot along the way and have gotten used to rolling with the ups and downs of this disease.

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  1. Becoming the Hero of Your Own Story

    By Jerry Cahill October 17, 2017

    Although keeping up with daily cystic fibrosis treatments can be frustrating, it is key for staying healthy and living the life you want to live. So, Superhero Big Air Jerry was born to help kids with CF feel more empowered in their daily CF care and overcome challenges through positivity.

  2. 60 for 60: Living Your List in Service of Others

    By Jerry Cahill August 22, 2016

    After turning 60, I decided to mark the milestone by creating a “living list,” 60 things I could do to raise awareness and money for cystic fibrosis care.

  3. Everyday Heroes Who Inspire Me

    By Jerry Cahill April 6, 2016

    There are many people in the cystic fibrosis community whom I believe possess hero-like qualities that I admire and who inspire me in my everyday life. I feel so fortunate for having crossed paths with them, and I very much look forward to meeting many more in this journey that I call life.

  4. Life With CF is Not a Sprint

    By Jerry Cahill January 4, 2016

    For those of us without a medication that targets our cystic fibrosis mutation, it’s important to remember that our life with CF is a marathon.

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